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Help me provide better care for caregivers and older adults
Hi Everyone! I was looking for caregivers interested in trying out my web-based app for free to help me improve it as much as possible! The application I have built is a dual-function a service that serves patients and providers alike. For patients, the it acts as a supportive friend, available 24/7 for casual…
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Kisunla Treatment
I would like to speak to someone who has taken the Kisunla ( elie lilly) infusion treatment or is currently taking the Kisunla treatment. I have just been qualified by Doctor Joseph Cheng to receive this treatment to reduce the amyloid plaque. and before I start the treatment I would like to speak to someone who has taken…
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Obsessed with thinking the internet company is "Stealing"
Does anyone else have to do this or just our family?
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Checking the weather repeatedly
Our father frequently turns on the Weather Channel throughout the day and night. He runs to the door, looks outside, and returns to his room to turn on YouTube and watch animal videos. Six/Seven times a day now. We imagine this is possibly to ensure the Weather Channel isn't lying to him. This cycle repeats several times a…
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Calling to shut off utilities
Our father has developed a belief that the utility bills are "stealing" his money, leading him to make phone calls to PG&E and Earthlink, demanding his money and requesting them to close his accounts. Fortunately, we have successfully established contact with the companies to prevent any potential disruptions in service so…
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Breaking Appliances
My father has developed a tendency to break appliances in our home, adding a new layer of complexity to our responsibilities. Over time, he has managed to break the washing machine, dryer, oven, and now the refrigerator, which is barely functioning due to the damage. We have been left to find alternative solutions for…
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Leqembi?
Hi I'm new to this group and looking for some advice. My mom is diagnosed AD last month. Her MMSE score is 14. Would Leqembi be effective for her? Does anyone have recommendation for resources we can talk to (researchers, medical experts, etc.)? Thanks in advance.
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Our Father is Obsessed with Turning Off the Utilities
One of the most challenging aspects of caregiving for a loved one with late-stage untreated Neurosyphilis dementia, GPI, and tabes dorsalis is managing their behavior and preventing them from causing harm to themselves or others. Recently, my father has developed a concerning preoccupation with utility services, such as…
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Should I replace my Mom’s Computer?
My mom is now in her third month in AL after a fall presented the opportunity for a change she had been resisting. She’s not as happy as before, but she’s managing and at least she really likes the food. Recently her ancient Chromebook died. She does post on FB occasionally and checks her email maybe once a week. She also…
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Compassionate Use or Expanded Access options
Is anyone getting any therapies through Compassionate Use or Expanded Access programs? I saw a comment from someone in a Facebook group who was considering TB006 a compound being developed by True Binding. So it made me wonder if anyone here has considered it or other experimental options that are in development.
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Lecanemab 3 year data
We listened to a presentation the other day by doctor at Duke University. He mentioned there is 3 year data now on lecanemab. He presented the info in a support group for those who are getting lecanemab or who may be interested in getting it. Open Label Extension Data Shows Lecanemab’s Continued Effect on Alzheimer Disease…
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Facebook?
DH is at a point where technology is meaningless. He uses neither phone nor tv remote. The computer and ipad have been ignored for a year. I have solved the problem of his phone and email messages, but what do I do with his Facebook account? He recently had a birthday and people were posting birthday wishes to him. I…
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New research on the timeline of Alzheimer's
Research is being called "ground breaking" Alzheimer’s May Progress in Two Phases, Transforming Understanding of Brain Damage - CogniFit Blog: Brain Health News
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Participated in a study
We participated in this study today. My wife, who has MCI with Azlheimer's pathology, is very interested in participating in research and signed up for a couple of non-drug related opportunities. We both participated in this one. Pretty cool and easy and we earned some money for it too. Qualitative Analysis of the Content…
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Good review article M1 receptor targeting
I came across this good review article from 2022 when I was looking for things to help my wife who is experiencing adverse effects from donepezil and rivastigmine. It’s a good review article of the progress being made to develop drugs that have less adverse effects. Doesn’t look like anything is coming on the market…
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National Academies’ Forum GLP-1R agonists
This discussion is open to the public and there is an option for attending virtually This is the class of meds that are being used for diabetes and weight loss. They are exploring their affect on neurodegenerative diseases…
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My great grandmother passed away
My great grandmother passed away due to dementia. Since she was very old, we didn't take her symptoms seriously, which I believe prevented us from detecting dementia early. Looking back, early diagnosis of dementia seems to be the most important thing. She had symptoms of delirium, but we didn't think much of it. It wasn't…
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Tale of the phone: master manipulator?
My DH has been in MC for about a month now. I visited him once and he actually seemed happier than he had been at home for a long time. It was a quick visit with my DDIL and granddaughter (age 3 yo). I brought him some items he had asked for and he seemed happy to see all of us, especially my granddaughter. Throughout his…
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How do you keep in touch with friends and family?
My dad moved to memory care about a month ago. He moved states, about a 5 hour drive, to be in a facility closer to me. At first I had hoped the MC staff would be able to help my dad talk on the phone or zoom with friends/family, but I don’t really think that’s something they do. My dad doesn’t have his phone because he…
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Caregiving Apps
Hi there, I just downloaded the free app, Carely, to see if we can organize care and visits for my aunt. Her husband is her full-time caregiver and we are trying to make it easy for him to let us know when he would like a break or help. Have any of you used Carely or other app? Any good tips? Thank you.
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Simple Universal Remote
I am looking for a simple, large button, remote control that handles the TV, Cable box, and sound bar. Mom is still in the milder dementia days and finds two remotes too difficult to remember. Unfortunately the remotes I'm finding by Googleing only control two things not three. I was hoping people in the group can…
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using technology to help with dementia
My mom is 84 and was diagnosed with dementia about 3 years ago. I'm a software engineer by profession and started working on a message board that can be hung on her wall. Essentially it's a 43" HDTV being used as a monitor for a small computer. The computer runs the app I'm working on. The board is controlled by a…
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Online Fraud and Scams
Our father just had his second attempted scam. I was lucky enough to be walking past his room when I heard the discussion he was having over the phone. He allowed someone access to his computer to "run a virus" check. We ended the call and have contacted his credit card company, banks, and financial planner. We don't want…
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Prevention and Slowing of Dementia
Hello everybody, I'm new to this forum and I've been reading a lot of posts over the past few days. I've been seeing a lot of people who have unfortunately been recently diagnosed with Dementia or Mild Cognitive Impairment and are unsure of what steps they can take to reduce their risk or slow progression of disease.…
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Internet Access
My mother is in Level 3 middle stage dementia. Long before her diagnosis, she had spending/hoarding issues... why purchase one of something, when you can buy a case (then forget and purchase another case)?. She claimed she was being a prepper, but her memory loss was often the reason for recurring purchases. After…
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Internet Access
My mother is in Level 3 middle stage dementia. Long before her diagnosis, she had spending/hoarding issues... why purchase one of something, when you can buy a case (then forget and purchase another case)?. She claimed she was being a prepper, but her memory loss was often the reason for recurring purchases. After…