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Lecanemab 3 year data
We listened to a presentation the other day by doctor at Duke University. He mentioned there is 3 year data now on lecanemab. He presented the info in a support group for those who are getting lecanemab or who may be interested in getting it. Open Label Extension Data Shows Lecanemab’s Continued Effect on Alzheimer Disease…
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Facebook?
DH is at a point where technology is meaningless. He uses neither phone nor tv remote. The computer and ipad have been ignored for a year. I have solved the problem of his phone and email messages, but what do I do with his Facebook account? He recently had a birthday and people were posting birthday wishes to him. I…
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Kisunla Treatment
I would like to speak to someone who has taken the Kisunla ( elie lilly) infusion treatment or is currently taking the Kisunla treatment. I have just been qualified by Doctor Joseph Cheng to receive this treatment to reduce the amyloid plaque. and before I start the treatment I would like to speak to someone who has taken…
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New research on the timeline of Alzheimer's
Research is being called "ground breaking" Alzheimer’s May Progress in Two Phases, Transforming Understanding of Brain Damage - CogniFit Blog: Brain Health News
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Participated in a study
We participated in this study today. My wife, who has MCI with Azlheimer's pathology, is very interested in participating in research and signed up for a couple of non-drug related opportunities. We both participated in this one. Pretty cool and easy and we earned some money for it too. Qualitative Analysis of the Content…
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Good review article M1 receptor targeting
I came across this good review article from 2022 when I was looking for things to help my wife who is experiencing adverse effects from donepezil and rivastigmine. It’s a good review article of the progress being made to develop drugs that have less adverse effects. Doesn’t look like anything is coming on the market…
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National Academies’ Forum GLP-1R agonists
This discussion is open to the public and there is an option for attending virtually This is the class of meds that are being used for diabetes and weight loss. They are exploring their affect on neurodegenerative diseases…
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My great grandmother passed away
My great grandmother passed away due to dementia. Since she was very old, we didn't take her symptoms seriously, which I believe prevented us from detecting dementia early. Looking back, early diagnosis of dementia seems to be the most important thing. She had symptoms of delirium, but we didn't think much of it. It wasn't…
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Tale of the phone: master manipulator?
My DH has been in MC for about a month now. I visited him once and he actually seemed happier than he had been at home for a long time. It was a quick visit with my DDIL and granddaughter (age 3 yo). I brought him some items he had asked for and he seemed happy to see all of us, especially my granddaughter. Throughout his…
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How do you keep in touch with friends and family?
My dad moved to memory care about a month ago. He moved states, about a 5 hour drive, to be in a facility closer to me. At first I had hoped the MC staff would be able to help my dad talk on the phone or zoom with friends/family, but I don’t really think that’s something they do. My dad doesn’t have his phone because he…
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Caregiving Apps
Hi there, I just downloaded the free app, Carely, to see if we can organize care and visits for my aunt. Her husband is her full-time caregiver and we are trying to make it easy for him to let us know when he would like a break or help. Have any of you used Carely or other app? Any good tips? Thank you.
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Simple Universal Remote
I am looking for a simple, large button, remote control that handles the TV, Cable box, and sound bar. Mom is still in the milder dementia days and finds two remotes too difficult to remember. Unfortunately the remotes I'm finding by Googleing only control two things not three. I was hoping people in the group can…
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using technology to help with dementia
My mom is 84 and was diagnosed with dementia about 3 years ago. I'm a software engineer by profession and started working on a message board that can be hung on her wall. Essentially it's a 43" HDTV being used as a monitor for a small computer. The computer runs the app I'm working on. The board is controlled by a…
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Online Fraud and Scams
Our father just had his second attempted scam. I was lucky enough to be walking past his room when I heard the discussion he was having over the phone. He allowed someone access to his computer to "run a virus" check. We ended the call and have contacted his credit card company, banks, and financial planner. We don't want…
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Prevention and Slowing of Dementia
Hello everybody, I'm new to this forum and I've been reading a lot of posts over the past few days. I've been seeing a lot of people who have unfortunately been recently diagnosed with Dementia or Mild Cognitive Impairment and are unsure of what steps they can take to reduce their risk or slow progression of disease.…
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Internet Access
My mother is in Level 3 middle stage dementia. Long before her diagnosis, she had spending/hoarding issues... why purchase one of something, when you can buy a case (then forget and purchase another case)?. She claimed she was being a prepper, but her memory loss was often the reason for recurring purchases. After…
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Internet Access
My mother is in Level 3 middle stage dementia. Long before her diagnosis, she had spending/hoarding issues... why purchase one of something, when you can buy a case (then forget and purchase another case)?. She claimed she was being a prepper, but her memory loss was often the reason for recurring purchases. After…