Have any questions about how to use the community? Check out the Help Discussion.

Leqembi?

windycity
windycity Member Posts: 1 Member
Hi I'm new to this group and looking for some advice. My mom is diagnosed AD last month. Her MMSE score is 14. Would Leqembi be effective for her? Does anyone have recommendation for resources we can talk to (researchers, medical experts, etc.)? Thanks in advance.

Comments

  • South Dakota Dave
    South Dakota Dave Member Posts: 24
    10 Comments 5 Care Reactions 5 Insightfuls Reactions 5 Likes
    Member

    Likely you would have a neuropsychological evaluation performed by a psychologist, then a neurologist to begin the process of doing the tests that are required to pass the Leqembi evaluation.

    This will take some time but with Alzheimer’s it’s important to move forward as soon as possible. We hope you have great results and know that Leqembi has some new advances coming soon.

    I have a year of Leqembi infusions, six more scheduled to do and likely more, so if you have any questions, I can help.

  • cbender40
    cbender40 Member Posts: 19
    10 Comments
    Member

    Hello. My mother is currently on Leqembi since September 2024. We initially went to her Neurologist who gave her a verbal test. He then sent her for blood work and scans. Based on these results he submitted it to the Leqembi rep they were dealing with and as well as the insurance company and she was approved. This process was over 4-5 months. Lots of waiting.

    When she began the infusion I would say she was more towards the moderate stage of the disease. We’ve hit some bumps in the road along the way as far as side effects, but overall it has been good. It is biweekly and the infusion itself is only an hour long. As per my mother’s neurologist they are trying to get it approved to do in the home so we wouldn’t have to bring her to an infusion center.

    After 10 infusions I believe she has remained the same and has not declined. Some people report after 14-18 infusions that they have seen improvement in cognition. If we could keep her from declining and comfortable for the remainder of her days that’s all my family could ask for. I hope this helped.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more