Have any questions about how to use the community? Check out the Help Discussion.

Anyone in queens ny area want to form a virtual support group?

I already posted in other forums so you may know about my mother.  My mother is 84 and diagnosed with dimensia three years ago.  I am her son.  She seems to be progressing in the disease.  I am scared of what i am told of the disease progression.  I pay to have a team of ladies to help me.  I do not have the physical presence of my family.  But i get phone calls.  My mother is a funny lady.  She is laughing most of the time.  She eats well.  Wheel chair bound.  I am told she is in the middle stages of dimensia.  I had a free support group at meals on wheels but the support group was disbanded.  My mothers dog was supportive but he passed away recently.  I learned a few things from reading the forums in this website.  I hope to gain a support group online.

Comments

  • Wilted Daughter
    Wilted Daughter Member Posts: 194
    Fourth Anniversary 100 Comments 5 Likes 5 Care Reactions
    Member

    Hi Vinm134,

    I'm not in Queens but if you looking to start a "virtual" group don't put location restrictions on the group. ALZ.org has a list of support groups, geographically listed. During the pandemic groups are virtual anyway, so you can search online or contact the helpline to find groups in your area. I attend virtual groups from east coast to west coast. 

    The ALZ Helpline may be able to offer suggestions. Best wishes to you in this regard, don't give up in your efforts. 

  • vinm134
    vinm134 Member Posts: 10
    Second Anniversary First Comment
    Member

    Thank you.  Duh.  I did not think of that.  It is true.  Thanks again.

    Today i cleared the bay window of christmas decorations and my mother is looking out the window.  I cut the bush over the few days after her dog passed away.  I was in mourning and felt the work would take my mind off of it. 

  • eaglemom
    eaglemom Member Posts: 551
    Legacy Membership 500 Comments 100 Likes 25 Insightfuls Reactions
    Member

    Please contact your local ALZ Chapter. Hopefully they are offering virtual support groups. Also your might try the United Way or Area Agency for Aging. Where we live, we are a Dementia Friendly City - and they offer daily activities. This has been WONDERFUL. Every day at 10:30 my DH knows he gets to virtually be with his friends and have a program. Each day is different. I can't say enough good about it. Many places offer groups, you just have to hunt to find them.

    eagle

  • vinm134
    vinm134 Member Posts: 10
    Second Anniversary First Comment
    Member

    Thank you for the tip.  I looked at the alz website and i signed up for 2 virtual classes.  I will look at the website again to see whatever help they offer.

    Thanks again

  • vinm134
    vinm134 Member Posts: 10
    Second Anniversary First Comment
    Member

    Today we had a zoom conference and my mother loved it.  The man told me she has aphasia and he was wonderful in helping my mother communicate.  She liked meeting the other people in the conference call.  We played a memory game.  We talked about alzheimer's disease and dimentia.  I have more meeting scheduled for this month as well as the next two months. 

    Thanks again.

  • Wilted Daughter
    Wilted Daughter Member Posts: 194
    Fourth Anniversary 100 Comments 5 Likes 5 Care Reactions
    Member
    I am so happy to hear this! Best wishes to you and my mom.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more