Things to Do for Mom with Early Onset

spx1026

Hey everyone!

My mom just got diagnosed with Early Onset Alzheimers, she's only 50 years old. She still knows whats going on so she is very very sad, cries a lot and is bored. 

I was wondering if there are some activities others like her like to do? Since she still knows what's going on, She doesn't like how she can't do things anymore and is embarassed to go out in public. 

What do others with EO like to do for fun and to keep busy? 

Please let me know as I hate seeing her so sad.

Thank you,

Daughter

Marp

Have you checked your local Alzheimer's association about programs for people in early stages?   My sister, who is 55, has participated in some of those activities and enjoys them.   Right now, they're all virtual, but she still enjoys them.

M4family

I'm sorry to hear of your mother's recent diagnosis.  My DH was diagnosed at 52.  In the beginning we carried out our day as usual but added more scheduled activities in the evening since I was still working.  We have reached out to DH friends to schedule coffees, lunches, walks during the day.  For a time DH volunteered transporting patients to chapel at a retirement home.  COVID has thrown a wrench in daily activities but hopefully those days will soon be behind us.  We have started going through boxes and pictures just so he can share stories with us while he can still remember and I can make note of those.  Depression is a real issue so keeping her engaged while she can is important.  Hang in there!

spx1026

Thank you for this comment. Her friends try to get her to go out for lunch or ask to stop by with a coffee but recently she just doesn't want to have anyone over or talk to anyone. She says she's embarassed and doesn't want people to see her like this. We try to tell her there is nothing to be embarassed about, that many people love and care about her and want to do things with her. 

it's also sad cause she knows shes sick and still knows whats going on

French

My partner is 50 years old and stage 5. I scheduled activities to occupy him everyday.

-  A paid caregiver comes twice a week. They play table tennis in the parks, run some small errands, play guitar, do pastry...

- A friend takes him for a walk 3 hours a week. 

- 2 days of daycare (he considers he goes there to help because the others are old

- Twice a week he goes to the speech therapist, to continue to write, do stimulation games...

Now that he is occupied, he sleeps better and is less depressed.

Chris109

My 55yr old brother recently has been diagnosed with FTD.  Living out of State and unable to visit regularly has been very hard.  I was hoping another had a Home Service Checklist of some sort for me to reach out for services.  He lives alone and wants to continue to stay in his Home as long as possible.  I appreciate any and all idea's or suggestions I can research.  My thoughts are with all who are dealing with this as well.

French

In my case, occupying him had two objectives : his well-being (social life, activities...) and being able to telework and soon perhaps go to the office without been stressed because he is alone at home.

Marp

I'm the same way with my sister - trying to find things she can do so I can continue to work.

She's still fairly independent; she feeds herself, can make some meals (no cooking), dress herself, bathes herself, and she can take her meds from the pill boxes I bought.  She can't drive and there are some other things she used to do, that she can't do without assistance so she can have difficulty figuring out what to do all day.