Rapid progression- hospice

Tross760

Well, for all the reading and trying to educate myself about this disease- I guess some things just don’t always follow the “usual path”. Mom was fully self functional and we had no idea she had any of this, then got a UTI in October that kicked off rapid progression and we were able to get her diagnosed with mixed dementia (AD & VD) fairly quickly by most standards. 

I have been able to secure some home help as of lately and then palliative care. She didn’t have her palliative care but about three days when I called them with some issues mom was having as well as a fall. Based on these problems they sent out their hospice RN for an evaluation and they immediately placed her on hospice. With the RN’s experience, she said it could be as few as weeks- month(s) that mom has left. 

I am surprised but shouldn’t be surprised at this I guess. We didn’t have the years of progression and tell tale stages, it just went from zero to Mach I in a heartbeat. I guess I am just talking it out. I can’t believe this is happening like this and so fast. All the medical equipment was brought to the house same day as well as meds for mom. I barely have my head wrapped around the fact she has these diseases, and then possibly need to say goodbye so soon. 

LaurenB

Tross760, I'm so sorry that you are going through this with your mom.  It sounds so fast and even if it was slower we might all want just one more day.  Virtual hugs.

Lauren

abc123

Tross, you and your family are in my heart and my prayers. I can only imagine what this is like for you. I am sorry. Please keep us posted.

Quilting brings calm

I am so sorry that the situation is what it is.  You’ve not even had time to deal with the original diagnosis.  Hugs

Flowers6strong

I feel you..I recently became caregiver for my MIL. She was perfectly independent just 6 months ago. She had a massive right sided emboli stroke. 4 weeks in ICU and 5 weeks in rehab. Total of 5 falls while in rehab. They sent her home with therapy 5 days a week. She slowly went down hill and with no progress hospice was called in to take over 2 weeks ago. She can no longer walk. She was walking with assistance and a walker and then one day just stopped. I have to do everything for her including feedings. However our hospice won’t give us a time frame so I have no clue what stage she’s in or how much time she has left. She can somewhat speak but can’t answer any questions or make decisions. He takes forever to chew her food and try to swallow. No real choking yet. Her hands and legs are starting to contract from not moving any. She’s so pitiful but we’re hangin in there. Just wish I knew a little more about how much time she has left. Prayers for all

Tross760

It has been such a strange two days for us. Mom was completely out of it yesterday, and then today it is almost as if nothing is wrong. Is this really what it is like? I am just dumbfounded and literally have no idea what to expect from one day to the next. And then of course trying to work full time and maintain my income, still pay attention to my family... etc. Sigh

Flowers6strong- big hugs to you. This is such a messed up disease. XOXO

Schmail13

I feel your pain.  We've had 2 episodes, one last month and one this month where she was totally unresponsive  to anything around her & just moaned and moaned.  Each day after she started to come back to herself and after 3 days, back to her "normal" .  It's so hard to watch and wonder what is going on.  Answers aren't very easy to come by, but in my heart of hearts I feel as though she is progressing quickly.  She wants to be with my dad,gone for 10 years and I totally support her wishes and understand it.  Sending you much positivity & strength.