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Completely destroyed mentally and physically from the inability to get help.

Can’t understand why it’s so hard to find help

Comments

  • Krimpet
    Krimpet Member Posts: 19
    10 Comments Second Anniversary
    Member
    Hi, What type of help do you need?
  • Cynbar
    Cynbar Member Posts: 539
    500 Comments Third Anniversary 5 Insightfuls Reactions
    Member
    Please be more specific so we can advise you. Are you looking to hire private caregivers? Are you looking for home health aide help paid by insurance? Respite? Placement? Has your LO had a hospice evaluation? If you give us more information, we may have some ideas.
  • eaglemom
    eaglemom Member Posts: 542
    Legacy Membership 500 Comments 100 Likes 25 Insightfuls Reactions
    Member

    Have you called the ALZ Helpline? Answered 24/7 800-272-3900 and ask to speak with a care consultant. They might be able to at least point you in the correct direction.

    What about the physician that did the diagnosis? Have you spoken with that office?

    If you would be comfortable please share what type of help your seeking. Its easier to help you then.

    eagle

  • mommyandme (m&m)
    mommyandme (m&m) Member Posts: 1,468
    1000 Comments Fourth Anniversary 100 Care Reactions 100 Likes
    Member
    Hope you’re doing ok...
  • HJFowler
    HJFowler Member Posts: 4
    Third Anniversary First Comment
    Member
    I agree wholeheartedly.  There are all of these services available but my mom doesn't qualify for any of them.  Nobody we know would want to help because she doesn't like to do anything and will walk away from them constantly.  Can't afford nursing home.   I just completed a 12 hour day of chasing my mother around because her meds may be wearing off.  I guess they will be increasing them on Monday at her Dr. appointment.  It's exhausting!  But of course the neighbors love to intervene to make us feel like we aren't watching her good enough so there's that.
  • CaringMate
    CaringMate Member Posts: 28
    Fourth Anniversary 10 Comments 5 Likes
    Member
    I agree with HGFowler...in my ten years of 24/7 caregiving I was unable to find any real help.  Depending what state you live in, will determine what services will be offered.  I live in Nevada and I can tell you there is absolutely no help of any value offered.  Even the one small group support meeting that was offered by the ALZ. foundation was stopped in Las Vegas.  I had two pro bono attorneys searching for financial aid for me and came up empty.  Not every patient is welcoming to outside help and in my case, my partner was so aggressive and violent that bringing someone into the home was just not an option, so while there is phenomenal advice given on this site, when it comes to getting and finding help, there are so many variables that real help may be very hard to find.  What worked for me in my decade long experience was first and foremost the amazing people on this site.  Then I watched videos from Teepa Snow and others online to help me gain the skills in communication so I could better understand my LO so I could learn and be more patient with him.  It was an uphill battle the entire time, but the challenge of being a full time caregiver ultimately made me a better and more patient person.  Realize that there are no hard and fast answers for the challenges that will come your way in this difficult journey, but you can always find support and understanding of your situation on this site and more times than not, the answers you are seeking...

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more