Early Onset Alzheimer’s Neurologist in NYC

dasherbln

Hi everybody: Been getting really frustrated since my MCI diagnosis that even in Manhattan I’m having a tough time finding a neurologist who specializes in Alzheimer’s, is willing to order PET scans, CSF and genetic tests and doesn’t turn away patients below 55. I’m 48 and am having a tough time dealing with the “we can’t think what it could be other than Alzheimer’s but come back in 18 months” approach. I understand that PET scans etc may not be the be all and end all and wont help me recover my memory loss but when I score in the 1 percentile for delayed recall and flunk two other neuropsychological tests you would think I wouldn’t be treated like I was being over-anxious.  Most recent experience this afternoon was being turned away from NYU Langone’s Barlow Center for Memory Evaluation and Treatment just because I am under 55. I know there are many great doctors in NYC in this field with a good empathetic attitude but need a little help finding one. So, please could you recommend any Alzheimer’s specialist in NYC who deals with early onset and otherwise fits the bill from your personal experience.

Best wishes all,

D

Iris L.

I responded on the Caregiver board.  

Iris

Jeff86

Among the stops we made for my DW was the Pearl Barlow Center.  They had little to offer, other than clinical trial participation but not for my DW, given her complex diagnosis.

I have a referral in NYC I can make for you.  Will reach out separately.