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Late Stage 7 - hanging on

Dreamer Lost
Dreamer Lost Member Posts: 17
Fourth Anniversary 10 Comments
Member
in Caring For a Spouse or Partner
Dh is still hanging in there with us.  He is sleeping more and more though, which is worrisome.  This just started the past week.  Can barely get him to wake enough to feed him.  Which is especially worrisome.  He is still at home with me and my daughter.  We have hospice aid come in 3 times a week to help bathe him. We can barely get him out of bed and into the recliner in the living room where he has started going back to sleep in.  He never slept in the chair before.  I feel him slipping away. In my head I know what is happening, it's just my heart that refuses to accept things.  I take comfort in feeding him what I can, holding his hand, bathing him, changing him and laying in bed with him (we have a large king size adjustable bed).  Just bought him a new soap from Bath & Body Works for men so he smells nice.  I keep buying him new t-shirts to sleep in, steak and desserts which he still enjoys when I get him eating.   
I guess I'm just rambling. Just sad. 

Comments

  • Stuck in the middle
    Stuck in the middle Member Posts: 1,167
    1000 Comments Fifth Anniversary 5 Care Reactions 5 Likes
    Member
    Sorry, DL.  You are too young for this.
  • jfkoc
    jfkoc Member Posts: 3,876
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    Not a ramble...just a share with those who understand.
  • LadyTexan
    LadyTexan Member Posts: 810
    Fifth Anniversary 500 Comments 25 Care Reactions 25 Likes
    Member
    I am sorry DreamerLost. I am holding you and your DH in prayer.
  • M1
    M1 Member Posts: 6,788
    1,500 Care Reactions 1,500 Likes 5000 Comments 1,000 Insightfuls Reactions
    Member
    Sad with you DL. wishing you courage and peace.
  • EdiBug
    EdiBug Member Posts: 14
    Fourth Anniversary First Comment
    Member
    It is terribly sad. I lost my EOAD last week at the age of 65 so I can relate to your feelings right now. Hug him while you can. It will be a comfort to you while you wait this disease out. Hugs.
  • Laurention
    Laurention Member Posts: 23
    Ninth Anniversary 10 Comments
    Member
    Yes.. hang in there..I lost my EOAD wife on January 8 ...23 days short of her 65th birthday.
    Because of COVID restrictions.. we just did the internment on June 19...
    My thoughts and prayers are with you, and yours.

       Mike


  • Last Dance
    Last Dance Member Posts: 135
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    Member

    Dreamer Lost                                                                                                                             Been there Done that. Your not rambling your just sharing your heart felt sadness knowing whats coming, but not wanting it to end. Your love for him is strong what more can he need. May God grant you his peace, love, and protection. Richard

  • amicrazytoo
    amicrazytoo Member Posts: 169
    Fifth Anniversary 100 Comments
    Member
    (((HUGS)))
  • Doityourselfer
    Doityourselfer Member Posts: 224
    Fifth Anniversary 100 Comments
    Member
    Wishing you strength.
  • Birdies
    Birdies Member Posts: 19
    Fifth Anniversary 10 Comments
    Member
    Sharing in your sadness dreamer… peace and comfort to you
  • abc123
    abc123 Member Posts: 1,171
    Eighth Anniversary 1000 Comments 5 Care Reactions 5 Likes
    Member
    Dear Dreamer, We understand. We are here for you. Sending peace to you both.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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