Have any questions about how to use the community? Check out the Help Discussion.

Sleeping a lot. It’s new

French
French Member Posts: 445
100 Comments Second Anniversary
Member

My partner sleeps a lot  for 3 days and doesn’t want to have dinner. After the daycare he sleeps about 3 hour (from 5 pm to 8), when he wakes up in the evening, he doesn’t want to eat. And he sleeps a normal night of 8 to 9 hours. One morning I even had to wake him up at 9am for the daycare.

This is very strange. Suddenly he sleeps about 12 hours per day. 

Did you experience this ? (Beginning of stage 6, I think)

Comments

  • Lynne D
    Lynne D Member Posts: 276
    100 Comments Second Anniversary
    Member
    My HWD (mixed dementia, vascular and Alzheimer’s) sleeps at night, and takes lengthy naps in the morning and afternoon. Generally, he is usually only up a few hours around meal times.
  • David J
    David J Member Posts: 479
    100 Comments Third Anniversary
    Member

    French-

    My wife is early stage 6 and sleeps about 12 hours, but doesn’t usually nap. Some of it is the meds, but also I have noticed a reduction in stamina. If we have an unusual activity, like going to dinner, she may get exhausted leading to sleep or super anxious leading to sleeplessness. It actually has influenced my thinking about day care. 

  • M1
    M1 Member Posts: 6,714
    1,500 Care Reactions 1,500 Likes 5000 Comments 1,000 Insightfuls Reactions
    Member
    French after a longer than usual outing on Saturday night (friend's house for dinner, gone about six hours) my partner slept for most of Sunday and Monday and was very out of it.  Some better yesterday and her usual self today.  No clue except the outing.  She falls asleep on the couch after dinner every night and (so far) sleeps pretty much through the night (I wake her up off the couch to go to bed).  Like David, I've thought about day care programs, but with her bad back, afternoon lie-downs are frequently a necessity.
  • Ed1937
    Ed1937 Member Posts: 5,084
    Sixth Anniversary 2500 Comments 500 Likes 250 Care Reactions
    Member
    My wife sleeps 9 - 10 hours per night. Then when she gets up, she's up for an hour or two, then falls asleep on the couch. Usually sleeps another couple hours or so.
  • Jeff86
    Jeff86 Member Posts: 684
    Fourth Anniversary 500 Comments 25 Care Reactions 25 Likes
    Member

    My DW, late stage 6, sleeps 10 - 12 hours overnight , rarely getting up. Sometimes longer.  Not unusual for her to fall asleep sometime during the day, too.

    There was a point in time last autumn when she was sleeping even longer, 14 or 15 hours.  Her neurologist felt that might be due to cumulative long term effects of her anti-psychotic med.  Reduced the dosage and overnight sleep returned to 10 - 12 hours.  

  • Stuck in the middle
    Stuck in the middle Member Posts: 1,167
    1000 Comments Fifth Anniversary 5 Care Reactions 5 Likes
    Member
    I think PWD often sleep more because mental function becomes much more an effort and they need the rest.  My wife typically sleeps 12-14 hours per night, and it is not unusual that I wake her for lunch.  If I wake her at 9 AM she is visibly tired.  If I wake her on two  consecutive days, she is irritable.  Three consecutive days and she is exhausted.
  • Beachfan
    Beachfan Member Posts: 790
    Sixth Anniversary 500 Comments 100 Care Reactions 100 Likes
    Member
    DH sleeps 10-12 hours, uninterrupted, at night. I wake him around 7 AM to use the bathroom; he is totally groggy, but complies.  Usually, I put him back in bed.  I wake him up by 10 AM for the day, if he doesn't wake by himself.  Breakfast, then to the sofa with quiet music and he will sleep, but not always deeply, until I get him up for lunch (about 2 PM).  About 4 PM, he starts pacing, talking to inanimate objects, sometimes will sit if I lead him to the sofa.  Dinner around 7 ish, then he will pace, chat, sometimes sit with me with TV on (doesn't watch it).  I put him in bed around 10-11 PM.  Sadly, we share absolutely no companionship at this point, but at least I can get things done as he sits quietly.  He grows more lethargic with each passing day.  Outings are few and far between; he seems to not have much stamina anymore.  I often wonder if he would get out of bed in the morning if I didn't make him do so.
  • Doityourselfer
    Doityourselfer Member Posts: 224
    Fifth Anniversary 100 Comments
    Member
    My husband will stay in bed sometimes for 14 hours.  Most times if he's awake he talks to himself while lying in bed, falls back to sleep.  He gets out of bed when he's ready.  I've never had to wake him.  He doesn't take naps but sits on the couch quietly.  His pacing days have passed.
  • Battlebuddy
    Battlebuddy Member Posts: 331
    100 Comments Third Anniversary 25 Care Reactions 25 Likes
    Member

       My husband sleeps from 7:30 to 7 am .By 7:30 I am “ off the clock”  During the day I would say it is variable. There are periods where he eats breakfast and falls asleep on the couch for a nap. Some days he is sad and crying by 8:30 and miserable. Same with the afternoon. 

       The sleep times are a blessing and I try to get a lot done or watch a favorite show,  catch up on my reading etc. , as I don’t know how long the nap will last. Take it as a gift of peace in the midst of this stressful journey

        

  • French
    French Member Posts: 445
    100 Comments Second Anniversary
    Member

    So, reading your answers, this is not rare. 

    What surprises me is that it seems sudden.  

    But thinking more, I remember that on Friday, I organized his birthday, inviting his colleagues (when he was still working). We went to bed at 1:00 am and as usual I waked up at 7:00, so he did the same. The weekend was quite busy and perhaps he was sleep deprived. 

    Moreover I now go back to my office so that when he comes back from daycare, he is alone between  1 and 2 hours and goes to bed.

    We will see if it continues.

    In fact I find this better. If he goes to bed when I am not at home, no risk. And when I come back I have a moment for myself before playing my caregiver role. It’s better than preparing the dinner with him pacing around me.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more