Waking EVERY DAY with pain and yelling

Cobalt

Anyone else experience this with their LO?  It's about an hour to 90 minutes daily to get my EO son up for the day.  He instantly starts yelling and raging the moment I give his meds.  I get a straw to his lips while he is still pretending to sleep, then comes the dose cup of meds and he immediately takes them and swallows.  But within seconds the all out rage erupts with yelling that he is in pain and he wants to stay in bed. Can this be a specific ALZ/dementia issue?  We hear that those with the diseases will feel pain far more than people without it.

We do have to get him out of bed to the toilet, to clean him up and dress him.  For a year the rule is: if you get up and eat something you can go back to bed.  But we find once he is already to the table eating breakfast, he never asks to go back.

We do have to get him up:  he has a seizure disorder and if he sleeps too long (over 15 hours) it can be a sign he's had a seizure in his sleep.  He does use and wants to use the toilet most of the time, although he has adult diapers on at all times.  We've got to get some food in him because he's lost weight from 100 pound to 92 pounds in two months.  The doctors have not figured out "what is wrong" but they do believe he has some sort of extreme pain in/near his "stomach".  I am thinking pancreatitis.  Gall bladder surgery 6 weeks ago because docs thought a small gall stone may have gone into a duct or pancreas.  No pain relief though recovered fine. In process of two unusual urology test procedures and back to GI doc in 3 weeks.  GI doc convinced something is causing this but now we'll have to do more complicated testing beyond the CAT, MRI, X-Rays, endoscopy and ultrasound.  

Meanwhile, he is in terrible pain every morning and then exactly half an hour after eating anything.  Thank goodness edible MMJ does help, since nothing else does.

Iris L.

My first thought would be a hiatal hernia with reflux, causing early morning epigastric pain.  The treatment could be raising the head of the bed on blocks and antacids.  Have the GI specialists ruled this out?

Iris

Cobalt

Iris, thanks for responding!  My son has been followed by GI doctors for about 3 years straight to work out problems from low motility in his digestive system, chronic constipation (from his lifelong meds), and recently acute pancreatitis which resulted in gall bladder surgery.  He's also been followed along by urologists. After maybe 6 abdomenal CAT scans, 6 endoscopy, numerous C-rays, bloodwork and lab work, this "stomach" pain is still considered "real" but no cause found.

My son's negative Alzheimer's symptoms are triggered by pain, and since this pain is intense, so are his anger outbursts,

Also, no ulcer, no acid reflux, no nothing.  So very frustrating!  The ONE thing I for sure know about Alzheimer's and my son is:  no pain, he's himself.  Pain = nightmare.

Iris L.

A few years ago Jo C posted about pain the PWDs can have that is like a delusion.  No physical cause still very real.   Oh, I just thought.  I recently came to believe my chronic abdominal upset is due to lactose intolerance after life-long milk drinking.  It's very simplistic.  I'm doing a lot better drinking Lactaid milk.  There is lactose in so many products, a trial off dairy products might be worthwhile.  Another thing that might help is a prescription for Bentyl, an antispasmodic.  It helped me a bit.  I know your son is on many medications and has seizures, so Bentyl might be too much for him.

M1

Cobalt, I saw your other post about taking him off risperdal. Have you considered putting him back on it? Just a thought.

loveskitties

Is your son on any meds which might be contributing to this issue...either directly or indirectly?

Perhaps there is some rare side effect in play.

Hoping that your med team can resolve this quickly to give him relief.

Cobalt

Again, yay, thanks for comments here!  I so appreciate people listening and hearing different approaches.

This morning was really bad, memorable even more than usual.  I managed to get some high concentrate MMJ syrup into him and it worked in a half hour.  He's been fine for the last 3 hours, so believe me, having this time where he is not crying out and is calm, enjoying TV, that's worth a lot!