Haven't been here in a while

numb

My hubby has been in and out of the hospital twice the past 5 months, first time took a fall while in the hospital got a call his pulse dropping in the 20's and pausing did emergency pacemaker. In June noticed his urine looked bloody and he had a fever called paramedics ended up he had toxic shock was in ICU one night and discharged 4 days later. They wanted to send him both times to a rehab but I brought him home and am taking care of him, waiting for medicaid waiver to go through to get help. 

My dad passed from Alz four years ago tomorrow. He was always active and wandering. My husband the total opposite. 

My concern now is that he is sleeping up to 18 hours a day, I have to wake him most times to eat, to clean him up or if someone comes to visit. Today our daughter and grandkids stopped and he forgot what street we live on this upset my daughter : (   Is this sleeping a sign that he is progressing into a later stage and my therapist told me to call hubby's GP and ask for hospice support. 

He also gets VERY angry when I have to change his clothes tells me to leave him the F alone and keeps saying just let me die : (

abc123

Dear Numb, please accept my condolences on the loss of your father. 

My LO sleeps a lot too. We recently called in hospice to evaluate her and they ended up signing her up. The help they are providing is invaluable. An RN comes weekly to check my mom. A CNA comes for 30 minutes, Monday thru Friday. She gives mom a bath and changes the bed sheets. She focuses on my mom, trims her nails and files them. That's a huge thing for us because she won't let me do that. She even gets mom to engage in conversations. That's also a big deal for us. Mom has told the CNA to leave a few times because she can take care of herself! (She can't) I would tell mom the CNA was there to help me help her. After a brief argument, she would calm down. 

The behavior you described is common for PWD. (people with dementia) However, each person is very different. I'm sorry you are dealing with this awful disease. I hate it with all of my being. Others will come along and offer suggestions and ideas. Please keep us posted. 

Another great thing about the hospice company we have is respite care. Mom qualifies for 5 nights of respite care in a facility for every 90 day period. What a huge blessing that is!

numb

Thank you ABC123.  

Will be talking to his dr about hospice.