Good dementia/caregivers story in WaPo
Almost overlooked this online because the headline focus is 9-11, and how many who did recovery have serious dementia young as 50.
But it also talks a lot—and better than most in MSM—-about what all caregivers face in dealing with any dementia at home, the problems and what’s needed, etc.. I rarely see that done much or so well in a general-interest story/publication like the Washington Post.
My links never work, but you can Google and it comes up quick; or maybe someone else can link.
Comments
-
-
Ed1937 wrote:
No its a worthwhile story but not the right oneThis appears to be the one your want
https://www.washingtonpost.com/magazine/2021/08/30/911-first-responders-dementia/
The work starts early. It never really ends. Ron wakes up between 5 and 6 a.m. He likes to walk around the house. Dawn makes breakfast, cuts his food into small bites — so Ron won’t choke — and feeds him as he comes and goes from the kitchen, one forkful at a time. She then shaves his face, brushes his teeth and gives him anti-seizure medication.
Some mornings, Ron will nap. Some mornings, he won’t. Nothing is predictable, and everything is fraught. Ron swallows his toothpaste. He struggles to step into the shower. He resists when Dawn tries to change his pants, or take off his shoes, or get him in and out of their car. “At one point, he was infatuated with my slippers and would put them in his mouth,” she says. “It’s very erratic. You have to be able to deal with that.”
Before Ron slid into dementia, he and Dawn would take daily, hour-long walks. Today, anything over 15 minutes is a challenge. In the afternoons, Dawn drives Ron to a coffee shop, then to a nearby lake to look at geese. “He used to love birds,” she says.
0 -
Thanks. I'm sure the one you linked to is the right one. Funny that the one I linked to I was able to access, but your link required a subscription.0
-
Thanks Ed, but crushed linked is the story I meant, with the hook of 9-11 first responders…sorry if a paywall, sometimes Google or another search engine can get around that.
It’s pretty long for a copy/paste, but maybe…I have rarely, basically never, seen a third-party reporter portray so well what caregiving for serious dementia involves/requires, regardless of what caused the dementia. More people should see the story, the problem is only going to grow.
0 -
I can definitely relate to that article. Nothing is predictable.0
-
Ed, it may be because the story you linked to is related to COVID-19. Many media paywalls allow free access to COVID articles.0
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more
Categories
- All Categories
- 479 Living With Alzheimer's or Dementia
- 241 I Am Living With Alzheimer's or Other Dementia
- 238 I Am Living With Younger Onset Alzheimer's
- 14.3K Supporting Someone Living with Dementia
- 5.2K I Am a Caregiver (General Topics)
- 6.9K Caring For a Spouse or Partner
- 1.9K Caring for a Parent
- 161 Caring Long Distance
- 109 Supporting Those Who Have Lost Someone
- 11 Discusiones en Español
- 2 Vivir con Alzheimer u Otra Demencia
- 1 Vivo con Alzheimer u Otra Demencia
- 1 Vivo con Alzheimer de Inicio Más Joven
- 9 Prestación de Cuidado
- 2 Soy Cuidador (Temas Generales)
- 6 Cuidar de un Padre
- 22 ALZConnected Resources
- View Discussions For People Living with Dementia
- View Discussions for Caregivers
- Discusiones en Español
- Browse All Discussions
- Dementia Resources
- 6 Account Assistance
- 16 Help