I just started reading this and so far it looks great.
Comments
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Wow as this is a great road map for people to use who need a diagnose. Its about time someone did this.
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I had just sent this out.
From: Michael Ellenbogen
Sent: Wednesday, September 22, 2021 11:42 AM
To: pbarbarino
Cc: George Vradenburg 'Lock, Sarah'
Subject: World Alzheimer Report-2021Hi Paola,
Wow, Wow Wow as the 2021 report is so great and needed. This is by far the best report that has been created by ADI and others. I have two recommendations. Add just a little bit more about SNAP. Also, to include the full list of the known genetic biomarkers known as of today. I have lost count of that but I think it was around 35 or more.
https://www.alzint.org/u/World-Alzheimer-Report-2021.pdf
Thanks so much for this as I believe this will be a blueprint to help many to work on getting a diagnoses. Hope fully it will also educate medical staff.
Michael
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Thanks for posting.0
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Dear Michael
Thank you so much for this lovely feedback and for reading the report. Much appreciated and will follow up on your suggestions.
I hope one day to see you all in person again.
A big hug
Paola
Paola Barbarino
CEO
Alzheimer’s Disease International
57a Great Suffolk Street, London, SE1 0BB
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Beautiful report but I am left questioning who/what it is for.
The charts and data are nice but I an left with the opinion that I started with. The major downfall is with the GP/PCP sector, This is not new news. We here have been discussing the diagnosis protocal for years stressing that the protocol be followed.
Why don't GP/PCPs know what to do and why do they not keep current? They are the frontline Drs.
Then come the neurologists who test and send us on our way.
Why is the most import thing....understanding the illness and treatment....left to PWD and/or their carecivers?????
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II will say this response after 4 beers. While you may know much of this it is sad that many people who have issues do not know were to turn. So hopefully this will give them a idea on what steps the need to take to figure out what is wrong with there love one.
AAs for as doctors it is very very said as so many are clueless. Maybe this may just help them. I am not sure it will but it's a good start.
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If this info is not disseminated to the Drs who Diagnose then how will the info get into the public. There has to be a way to get this to the public in small doses. The fact that all this info is now in one place is great....it can act as a resource but there has to be a simple vehicle.
That is why I asked about the endline purpose.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
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FTD = Frontotemporal Dementia
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MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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