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First Post seeking guidance

Hello everyone, I am a legal permanent resident in USA. My mother is 83 years old came to visit on January of last year. She has Alzheimer's since 2013 she needed daily assistance with almost everything except going to bathroom. She had a wheelchair to use when we go out.  Due to COVID and travel restriction she could not return back home on time, so we filed for a stay extension with US immigration. 

Her condition declined severely in the last 2 month and she became a bedbound and lost her ability to walk,  can not eat solid food, in addition to extreme behavior changes. I am having hard time cleaning and rotating her because she screams of pain on her feet.  X-rays and hospital records confirms there is no broken or fractured bone. Sending back home on a non emergency medical plane cost close to 200K. Commercial plane will be next to impossible to use in her condition, I highly doubt an airline will allow it.

I think she is in stage 7,  so at this point I would think hospice care is what she might need. 

Anyone knows how to get some sort of support at a reasonable price for some one in her situation where she has no medial insurance in the US. Thank you all for taking the time to read my post. God bless you all!

Update 09/24

Thank you for your feedback. I called few nonprofit hospice care. One of the companies were very helpful and offered a financial assistance. I signed up and they will start on Monday. I feel relieved and hopeful knowing help is on the way.  Thank you so much for your support!

Comments

  • Cynbar
    Cynbar Member Posts: 539
    500 Comments Third Anniversary 5 Insightfuls Reactions
    Member
    Hospice would be a big help to you, find a local company (there are usually several to choose from) and call them, ask them to come out for an evaluation. They take people without insurance, they will have some forms to fill out about her finances and then will discuss with you a sliding fee scale, sometimes as little as zero. It's actually not an unusual situation, almost every hospice will have some people without insurance because they lost it when they got sick and couldn't work. Of course, your mother would have to qualify medically, but the hospice staff will lead you through the process. If the first one you call can't help, call another --sometimes different hospices have different qualifying criteria.
  • aod326
    aod326 Member Posts: 235
    Third Anniversary 100 Comments
    Member

    I agree - many hospices have specific funds for helping people without insurance. You might especially investigate not-for-profit* hospices, and/or those with a religious affiliation. They often offer help for what used to be known as "charity cases".  (Hospitals too, by the way.)

    I'm sorry that you are in this situation. Good luck.

  • Wilted Daughter
    Wilted Daughter Member Posts: 194
    Fourth Anniversary 100 Comments 5 Likes 5 Care Reactions
    Member

    Ditto...local/state elder services agencies may have information about suitable care for your mom. In our state non-citizens can apply for Medicaid (current requirements apply). 

    Search: (other states may have similar programs for uninsured/undocumented persons)

    healthcare.gov/immigrants/lawfully-present-immigrants

    Centers for Medicaid and Medicare Services CMS (medicaid.gov)

    Health Safety Net (HSN)

    Federally Qualified Health Centers (FQHC)

    You may also post in libraries, senior agencies, social sites, etc. or put out an ad (free newspapers) that you are seeking a PCA (like posting for a babysitter) but more detailed/with more required qualifications. 

    Hope this helps and you find the information you need. 

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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