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Scared this is getting closer to the end

Hello all. I am struggling with wondering if my LO (diagnosis is vascular dementia) is nearing the end. They have dementia and are struggling. Some would say that the light has gone out in her, even in the last few weeks. She wants to sleep all the time. But she is still eating (less), drinking, going to the restroom with minimal accidents, and some talking (but tracking is decreased). I'm getting scared-but also, I have no idea what to expect.

Comments

  • terei
    terei Member Posts: 580
    Seventh Anniversary 500 Comments 100 Insightfuls Reactions 100 Likes
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    If you feel the progression is accelerating, I would have hospice come in and do an assessment. An objective eye may be able to give you clarity about her condition.
  • Jo C.
    Jo C. Member Posts: 2,940
    Legacy Membership 2500 Comments 250 Likes 100 Care Reactions
    Member

    I can well understand your heartfelt concern.   While this may possibly be the progression of her disease, there may be other reasons why such changes have evolved.

    Is she at home or in a care facility?   One of  the first things I would think of would be to have her checked by her doctor if that is at all possible.   Sometimes the changes in our Loved Ones (LOs) is secondary to treatable conditions such as any infection including the simple "silent" urinary tract infection; or from dehydration or electrolyte issues; or other changes in the body that can be treated.  One would have a urinalysis with  culture and sensitivity done as well as a blood draw for a complte menu of labs to be done to check her various body systems.

    Sometimes as said, there is an undiagnosed physical issue that is treatable; but sometimes there is indeed a decline in condition secondary to the disease advancing; if that is so, we keep our LO as comfortable as can be and simply give our love and know that we are honored in being with them in that love as the end of life approaches.

    Do let us know how she and you are doing, you are a very loving granddaughter and she is blessed to have you by her side.

    J.

  • Wilted Daughter
    Wilted Daughter Member Posts: 194
    Fourth Anniversary 100 Comments 5 Likes 5 Care Reactions
    Member
    This can be alarming, but as suggested having an assessment by a medical professional to see if there is a treatable condition or to plan for adjusted care will be helpful. The feeling of watching someone decline for whatever reason is a difficult experience, but after having an evaluation you can plan, be more proactive.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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