Just like a shut down my web sites I am shutting down the information I share here

Michael Ellenbogen

I can not continue to share 3rd party information that I feel would help you all. I have access to the best folks in and always hot off the press. When I thought it would be helpful I shared it with you . But I am really getting tired of being the one that has to defend things here. If someone wants to step up to receive them from me directly and they share it that is fine but I am no longer going to post those things. I have to many balls in the air and I can not become distracted to defend stupid things. That takes away from bring great change around the world.

jfkoc

I understand but I urge you not to do this. 

Your posts are well received by most here so please dismiss the negative/critical/sometimes just plain mean responses. Just keep in mind the good you are doing and not even reply to them.

ladyzetta

Michael,   I agree with Judith. Most of the negative replies are from negative people. Hugs Zetta

mommyandme (m&m)

So I found the source of disgruntlement and my response to it:

Humble thyselves people.

Us “stupid” “folk” need all the help we can get.  It’s our own responsibilities to vet the help we choose to use.  Give us some credit. 

What a useless downturn this has taken. Jeesh, so sorry.  

Exactly what I needed today… not…something more to exacerbate my fears, anger, bewilderment etc… especially after my day yesterday.  I was researching caregiver suicide of all things. 

Don’t give up or give in!

TessC

I have been a long time member here and I have found the information you shared over these years to be very welcomed. The information you shared may not have always pertained to my situation and some of it was not helpful, but that does not mean it was valuable to someone else. I understand it is within your rights to stop sharing here because of the backlash you get from some people, but may I suggest you present the information you would like to share and then not return to the topic and therefore will not see the responses. You may miss some requests for further information or advice, but we can do our own research if we are so inclined to learn more.

 I wish you well whatever you finally decide to do, Michael. You have always been a friend and champion for those with any form of dementia.

Michael Ellenbogen

II can  not believe I am saying  this but I will continue longer to do this. I have  received so many emails, and people reaching  out to me over this that I can not let down. I have never given up on things because  of other's  and you folks have reminded  me of my values.  My hope was always to get you the best information that could hopefully help someone.  It also had to be timely  as so many of these  sites  fail to do that including this one. I attended many of the same meetings an they never share  the information.  That is what drove me to start  sharing it here. And yes I have a car at at most places AA does and I bet they hate I have become so powerful  as person without being an organization  or company.  I have shocked them all. So I will share the report  with you on the 10th.  Thanks so much for all of your support.

BassetHoundAnn

I am glad you are sticking around Michael! I always enjoy your messages and I appreciate the information you share. Thank you for taking the time to post and forward info to us!

lemontree

Well, I have been drivin nuts trying to get so many evaluations for my mom and in the meantime she has gotten worse. Trying to get help is like facing a wall with the largest puzzle you have ever seen in your life and no one will give you any clues. So, if you are dealing with anything like this only since you are trying to help it must be a mess on such a larger scale. I thank you for helping and I think you should have some mint tea and take a break, maybe just stop for a little while. I myself like to watch birds out the window. I am amazed you have amass of information to help with.

Iris L.

It's so easy to become discouraged.  But you work hard to bring info we don't know.  So please continue, Michael!

Iris

Mint

Michael sorry you have felt disappointed.  There are many people who just watch and don’t comment but find much help.  I was one of those for a year.  

M&m this is probably a way bigger problem than we may realize.  Know that when I was living in the situation, never thought about committing suicide.  What I did think about was how I was going to carry it out if I got to where I could not deal with it anymore.  I did not want to, as did not want my family to have to bear that burden.  Also realized though that I might get to the point that it would do to them didn’t matter to me any more.  If you are getting to that point please call a care consultant here, or talk with friend &/or family if available to come up with a plan to change your load.  I was provided a way out of some of the stress and do not have those thoughts about this now, and am thankful for that.  

ButterflyWings

Michael, 

Your contributions are extremely valuable! I added my note of thanks and support yesterday but do not see that post anymore. Maybe it did not go through. I’m so glad you are not giving in to the bullying that unfortunately pops up on these boards sometimes. 

Most responses I have seen to your posts are supportive, appreciative, and inquisitive - seeking a better understanding or more information  if anything. And, like Sayra, used to, I read far more than I actually post—just due to time constraints and all the demands of 24/7 caregiving for my active 6c DH. Thank you for sharing.

D42itus1

There is no help for person whose wife considers him inflicted. Erase inflicted for you minds we are not inflicted. Take better care of those diagnosed. They get abused by the spouse that considers them inflicted. Is this the donut hole for the diagnosed. Adjust your public attitudes, treat those that have been diagnosed. Protect them from evil.