reality(2)

DrinaJGB

 DH had his NP testing session and the report is not good.

  The suggested diagnosis from results of hours of testing is "Dementia due to mixed etiologies, mild severity"

 ---and an additional comment that states "due to evidence of progression and lack of insight suggests comorbid Alzheimer's disease."

Now we are at the crossroads. For nearly a dozen years after his near fatal viral encephalitis I have held out hope that DH would slowly keep improving, so this testing diagnosis has hit me in the face like a brick.

Now we return to his neurologist next week. I do not know if the doctor will tell DH what this testing showed or not. Even if he did tell him--DH lacks insight into the reality of his situation as it is, and it will possibly have no impact on him.

I think we have reached the point---as far as my feelings and thoughts are concerned after so many years of hope--of simply letting go of hope now.

The weird thing is I have not yet cried. I just feel numb.

I have no other choice but to carry on and take whatever gets thrown my way for another how many more years.

Ed1937

Drina, I'm sorry to hear of the results. No doubt it hit you like a ton of bricks. Hopefully you will be able to accept it, and do your best for him.

Buggsroo

Drina,

I am so sorry for the latest diagnosis. I imagine you need time to process this. I find every time I see more deterioration, I go into a depression. This disease is just evil.

Joydean

Drina, I am so sorry for this news that just hit you. Hopefully when you guys meet with the doctor he will get your husband started on some meds that will help make day to day easier for both of you. God bless you!

Jeff86

Drina —. The loss of hope is, indeed, a devastating loss.  No wonder you feel numb.  Grief will come, as you process the news, but there’s no need to rush it.  You are now on the same path as most of us, and it’s one way, grief filled journey.  All I can say is we are fellow travelers with you, and will do what we can to lift you up and support you.  I am so sorry.

DrinaJGB

Thank you all for your kind words.

  I have been a traveler on a surreal journey for nearly a dozen years with no real explanations and a lot of confusion.At least now I have definitive diagnosis and know what to expect--another long and winding road with no happy future.

  It seems I have been in some sort of grieving process for many years off and on in dealing with a rare and strange brain injury; now knowing it has progressed into another awful disease-- I know what I will definitely lose in the end.

And I have this forum with all of your collective wisdom and experience.

Thank God for you all and carry on.

dj

abc123

I’m very sorry to hear this.My heart goes out to you.