Keep a look for this

Michael Ellenbogen

I will be interviewing Teepa Snow and she will be interviewing me. We will ask each other the hard questions to each other and nothing is off limits. Do you have any questions I should consider? This will be two-hour show. None of this is planed and she will not know until I ask her. 

M1

Sounds like fun Michael.  I'd be interested to know what things has she found the most challenging--what has stumped her, either professionally or personally, in her experiences with dementia?  Not trying to trip her up, but just curious.  I would also be interested in how she thinks the US is going to handle the anticipated huge increases in dementia patients over the next few decades:  what are the biggest challenges she sees in that arena.

Iris L.

Why do so many caregivers say they feel guilty when they place their LO into a care facility?  I think it is anticipatory grief.  Guilt is about doing something wrong.   Providing the best available care is not wrong, it is a blessing.

Iris

Michael Ellenbogen

So far, I will use one of the questions here. Thanks for your input. Still looking for others.

Ed1937

Michael, this sounds like a great thing. She is excellent, and you provide input from the patient's perspective. Hopefully this will be made into a video that can be accessed on youtube or on her site. Is that the plan?

I have one question that some (most?) of us will likely encounter at some time during this caretaking process. When the patient becomes fecal incontinent, and they are still fully aware of what is happening, how can the caretaker involve himself/herself into helping with the bathroom process when the patient is fighting it tooth and nail? 

Michael Ellenbogen

She has actually has spoken about that. You may be able to find that online for free. She does offer some free classes on her website.  Good idea about the video. I will ask the person today if that is part of their process. I think they will have two versions.

Davegrant

As a caregiver one of the most emotionally charged challenges for me is my DW personality changes. The dementia response seems to be that its not DW it is the disease. How does Teepa Snow feel about the present approach and is it working?  for the LO? and for the caregiver? Is there any research being done on response(s) to behavior changes.

Michael Ellenbogen

There will be a live audio for the radio show and a separate zoom recording of what is said on the radio scheduled after mid-January.