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Bad Dream

It is hard to imagine but we have progressed to the final stage. My strong stubborn mom has been bedridden since Christmas Day without eating or drinking. She has been on hospice for quite some time and is end stage frontal temporal dementia so the past 6 years have been very eventful. I have read post after post trying to prepare for this moment but you are truly never prepared. I hate this disease- it truly robs a person of their soul. I have watched my mom as one by one her lights have went out, feeling helpless. It is truly an unfair end for an amazing person.  If anyone reads this post- please hug your loved one with dementia everyday, help them feel loved and valued. No one would choose this disease as their ending.

Comments

  • M1
    M1 Member Posts: 6,788
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    Peace to you and your family, may this be a release from suffering for hef.
  • mommyandme (m&m)
    mommyandme (m&m) Member Posts: 1,468
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    Sending thoughts of comfort and peace as you go through this phase of the journey.  I’m so sorry! 

    It’s so difficult to watch the layers of my mother peel away.  She’s no longer wearing any jewelry like she always has.  I just removed her last earring.  She doesn’t realize it.  I know it’s just a small thing but it was important to her and it caught me off guard this week.  I understand what you’ve been going through.  

    I do hope you can rest soon.  

  • abc123
    abc123 Member Posts: 1,171
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    Dear Fitz, 

    Tomorrow, when I hug my mom, I will be thinking of you and your mom. 

    My mother is also at stage 7. When you say you "hate this disease", I know exactly what you mean. Sending you peace.

  • Stuck in the middle
    Stuck in the middle Member Posts: 1,167
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    "Bad dream" describes it very well.  My mother went down that road in 2018.  There was nothing I could do so I had to accept it.  Sorry
  • ninalu
    ninalu Member Posts: 132
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    Fitzpal,
    I'm so sorry. Your love and dedication is so clear. I wish your mother freedom and release from pain and illness, and peace for your heart in this difficult time.
  • MyBestFriend
    MyBestFriend Member Posts: 6
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    I will be thinking of you and your mom as you go through this stage.  My mom has rapidly gone downhill this past week after a hospital stay.  Sometimes one day or one week can make such a difference in this disease.   You obviously care deeply for your mom.  I'm so sorry that you both have to go through this. Yes, we have to hug as much as we can for as long as we can.  God bless you both.
  • dayn2nite2
    dayn2nite2 Member Posts: 1,135
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    No matter how much you try, there truly is no preparing for this time.  With my mom, I was actually grateful for her that she was gone, because I knew she was no longer suffering.  I wasn't ready either, though.  I hope her passing comes peacefully.  At this time, I hope you are gentle with yourself afterward, rest a ton and let yourself process your own grief in your time, not on anyone else's timeline.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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