Open Discussions with your LO in early Cognitive Impairment

M1

hi keep hope alive and welcome to the forum. This is a very old thread started over two years ago and the people involved may not still be here. You will probably get more responses if you start a new discussion. Most here are skeptical of Brenden because of the money involved. Beware of anyone who tries to sell you something.

Phoenix1966

In addition to what @M1 suggested(starting your own thread), the OP, @Otterly , last posted exactly a year ago in a second thread they started, titled ”Knowing what you know now, what would you have done then?”and wrote:

“I just reread this thread and all the excellent suggestions. Thank you all again. ( It’s hard to come here and read more about the inevitable) . 

We have moved permanently to our mountain home, and so enjoy our time together. Many of you have said this here or in other posts…it is a very lonely journey that does not end well. So we try to enjoy what we can. DW spends most days in bed until mid day and is too self conscious to do much socially. We have a very small number of neighbors and all have been supportive.

It took me awhile to accept the inevitable. I still study as much as I can about the disease, but my conclusion is, no matter what kind of dementia you LO has, each case is different and there is no cure. ( the exception may be Bredersons protocol, but the regimen needs a motivated patient AND an motivated care giver)

something’s I’m glad I did:

1. full financial and trust overhaul , very early so LO participated
2. Built an addition onto our cabin that is a full suite for LO. We both live in It. Kitchen and laundry in the main house.
3. Picture album of outfits LO loves. As she wears an outfit I add a picture to the album. Helps her decide what to wear.
4. dry erase board in bathroom to help ME remember the date.😁”

Cranddi

My wife is at a similar stage as your LO. A year ago I became concerned about her driving because of navigation issues. When riding with her in the car her driving seemed fine, but several times when by herself she called me for help because she was lost. Her Neurologist ordered a OT driving test for her in a simulator. The results were scary. Under normal conditions, her driving was acceptable. However, when faced with unusual circumstances (car abruptly stops in front of her, a child steps into the street, etc), her reaction time was terrible leading to horrendous results. Normal reaction time is fractions of a second, her reaction time was 6-7 seconds. Her brain was not able to process what was happening fast enough to avoid a collision. Fortunately this was discovered in a simulator. The doctor stated that she should cease driving immediately. She hasn't driven since, but it was a struggle for several months because she insisted "she's never been in an accident".