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It's DH's birthday...and the sadness just never ends

DH is stage 7e and is in MC. He was 7b when accepted to Hospice in Sept. In one moment he fell (literally) to 7e in Nov. He's been bedbound since. He has to be hand fed. He doesn't smile. He doesn't talk. He's very rigid and seems to have some pain. Yes, he has pain meds. I took cupcakes and a candle for his 66th birthday today and I sang "Happy Birthday" to him. Absolutely no reaction. One more stab in my heart. Watching this happen to him/us is so painful. I cry so much lately. I'm so depressed lately. I just wonder how much longer this will go on. How much more I can take. He was diagnosed almost 6 years ago. Enough already. I pray God takes him soon.  So, no questions, just a lament. May God bless us and our LOs.

Comments

  • Scooterr
    Scooterr Member Posts: 168
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    Marie, my heart goes out to you. I always believe tomorrow will be better and we Soldier on. Today is hard I know and I'm praying that you find comfort.
  • Ed1937
    Ed1937 Member Posts: 5,084
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    We understand. We understand. I'm sorry.
  • mrl
    mrl Member Posts: 166
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    Oh Marie,

    I'm so sorry...I will pray

    Michele

  • M1
    M1 Member Posts: 6,719
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    May there be mercy for both of you. ....wishing you peace and strength Marie.
  • Jeff86
    Jeff86 Member Posts: 684
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    My heart goes out to yo, Marie.  I wish this didn’t have to be so hard.
  • Beachfan
    Beachfan Member Posts: 790
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    I’m so very sorry, Marie.  I will visit with my DH tomorrow- - we’re not too far behind. Thinking of you and praying for you both.  Stay strong.
  • Joydean
    Joydean Member Posts: 1,497
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    Marie my heart goes out to you and your dear husband. God be with you both and give you peace.
  • ButterflyWings
    ButterflyWings Member Posts: 1,752
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    (((Marie)))
  • Doityourselfer
    Doityourselfer Member Posts: 224
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    Marie58,

    Thinking of you and your husband.  

  • toolbeltexpert
    toolbeltexpert Member Posts: 1,583
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    Sorry to hear Marie,
  • June45
    June45 Member Posts: 365
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    Marie...prayers going up for you and your husband.
  • JudyMorrowMaloney
    JudyMorrowMaloney Member Posts: 74
    Third Anniversary 10 Comments 5 Care Reactions 5 Likes
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    June45, can you pray for me too? My DH is losing his ability to communicate and I am having the same feelings as Marie. My heart goes out to you Marie. I'm going through it too and I agree. Enough is enough!
  • Lindsay22
    Lindsay22 Member Posts: 85
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    Oh Marie I am so sorry. The not knowing how much longer is the hardest thing for me, I just want the suffering to end.  And I want your suffering to end.  Praying for you too.
  • Marie58
    Marie58 Member Posts: 382
    Fourth Anniversary 100 Comments
    Member

    Thanks everyone. This is such a supportive group.   

    A friend stopped by unannounced because she knew it was DH's birthday. She hugged me and we cried together. Then I spent the evening with our son and his family, so that helped too. I pray for strength everyday for all of us. 

    Blessings, 

    Marie

  • Ed1937
    Ed1937 Member Posts: 5,084
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    Marie, I'm glad you at least have a friend and family to help with your struggles. That is huge!
  • ImMaggieMae
    ImMaggieMae Member Posts: 1,010
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    Marie, I am so sorry you are both going through this. Strength and prayers.
  • Buggsroo
    Buggsroo Member Posts: 573
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    Marie,

    I am so sorry, it isn’t easy at first, gets harder and harder. I never thought I could weather this sadness, I can but is awful. Big hug sent your way.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more