Anybody under the age of 30 on here??
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I am not that age now, but I lost my dad when I was 18 and my mom at 30 My mom had ALS and my sister and I took care of her - it was very hard. I began to miss her even before she passed because I was losing who she was to me.
I can definitely relate to the loneliness and pain. I remember feeling like an orphan even though I was an adult. Even though I still miss them, it got somewhat easier after I started my own family. There were still times I wished I could have called my mom for advice especially when my boys were babies. I missed my dad terribly when I got married, my uncle walked me down the aisle, but it was not the same.
My in laws became like my second parents (thankfully, we had a good relationship).
I’m sorry you are going through all this. It is so, so hard. It does get easier - the void never goes away but the pain becomes less poignant over time.
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I am! I am 25, and taking care of my grandmother. I absolutely understand you. I would be happy to chat, as I also don't know anyone who 'gets' me0
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I am 35 and have been caring for my father all alone for the last 5 years. Message me if you ever want to chat.0
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Thank you for making this post. I'm 25 and I'm also caring for my dad, who has early onset alzheimers. I feel extremely lonely and lost at times, because similarly, I don't know anyone my age going through the same thing. I'd love to chat with you and anyone else here who's going through something similar!0
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I am 27 and run a group on discord that is mostly comprised of caregivers under the age of 35. If you want an invite feel free to the PM, I will say we do not do much talking about caregiving. We mostly play games, chill and hang out. It was mainly started to allow us a place to get away from the drama of caregiving and get back to things we enjoy such as gaming, anime, drawing, debating whatever really.
Think of it like a guild we played a lot of WoW classic,. and now we have been playing a bunch of LostArk. We are mainly nerds and geeks at heart, some of us like myself have careers, others are 100% caregivers. Judgement free zone across the board, our motto is we are gamers first here caregivers LAST. It is meant to be an escape from the harsh realities of life. Not sure if that is what you are looking for since it is not so much a support group more so a group of people that have been dealt a poor hand and just trying to make the best of it,
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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