When the sadness descends
I like to think that I’m pretty resilient as a caregiver, but there are times when the heartbreak defeats the resilience.
DW slept 15 hours overnight and only awoke reluctantly. She has spent most of the day sleeping, sitting up. One manifestation of the long goodbye.
Here’s the poem I wrote today, reflecting on where we are and where we are headed.
Into the Woods
we have not moved
yet here we are, somehow,
not knowing quite how we got here
living on the edge of a forest
these woods are not lovely
though they are dark and deep
and you have never been
a frontierswoman
but every day now
you take a walk in the woods
you take no heed of my warnings
it is a wilderness
without trails, without paths
without ways of going and ways of returning
only traces of steps
wild creatures have trod before you
I want to follow
to accompany you
to walk beside you
but as frail as you are
you leave me far, far behind
when you return
you cannot say where you’ve been
or what you’ve seen
and I know
against my wishes
you will venture forth alone again
tomorrow, and the next day,
and the day after
and I know
that each day
you will wander deeper into the woods
without destination, without purpose
driven, impelled, incapable of stopping
and I know
one day
soon
all too soon
you will not return
Comments
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Beautiful, Jeff. Thank you.0
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Nice job, Jeff. Having a spouse with this disease is hard. Very hard.
Thanks,
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Jeff your poem is beautiful and yet so very true, also heartbreaking. None of us can stop this darn* disease no matter how hard, all we can do is take care of our love one and do the best we can.
Thank you for sharing. And I’m so sorry!
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Echoes of Robert Frost Jeff. We all have promises to keep? Thanks for sharing it. I'm sorry it's so painful sometimes. Guess that's why I'm awake at 2am....and here on these pages.
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Beautiful. Tragic. True.
Thank you for sharing this. The sadness has overtaken me the last few days as well. Needed to come up for air. I appreciate your perfect timing and poetry giving voice to my reality too. Stay strong.
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Jeff, you nailed it. Thanks for sharing.0
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I also believe I am rather resilient as a caregiver. I accept that dementia has sucked life from my wife and emotion from me. Your beautiful words, however, made me cry. After I read your poem I went into the room where my best friend was just sitting. She looked so lost and alone. And it reminded me that she is deep into her woods and not going to return.0
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Beautifully written, and ever so sad.
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Jeff, thank you for posting this. It has been a sad couple of days for me too and your poem expresses it so well. This is all so unbelievably sad. For all of us.0
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Jeff, I live in a home surrounded by woods so your words really resonated. Thank you. Only someone who is going through the horrors of watching our LOs disappear into those woods can understand what we face.0
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Beautiful poem. My dh has been sleeping 21 hours a day since October. Called 17 psychiatrists and can't get an appointment to treat depression. Neuropsychologist won't give a dementia diagnosis until the depression is under control. So life is now sleeping all the time, coming downstairs twice a day to eat, then returning to bed. No medical help except pcp. So overwhelming. I totally understand how you feel. Jeff0
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Jeff, Your poem certainly hit a never with me. Very accurate description of this journey.0
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Yes ...0
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Jeff, this is the most heart touching metaphor and beautiful poem. Thank you for sharing it with us. It connects me with something so much greater than myself. ~Helen0
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Beautiful and says it all. Thanks for sharing0
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true. sad. expressed beautifully.
take care of yourself Jeff
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Thank you so much for giving voice..words to my pain.0
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Thank you. I needed this today.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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