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When the sadness descends

Jeff86
Jeff86 Member Posts: 684
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I like to think that I’m pretty resilient as a caregiver, but there are times when the heartbreak defeats the resilience.

DW slept 15 hours overnight and only awoke reluctantly.  She has spent most of the day sleeping, sitting up.  One manifestation of the long goodbye.

Here’s the poem I wrote today, reflecting on where we are and where we are headed.

 Into the Woods

we have not moved

yet here we are, somehow, 

not knowing quite how we got here

living on the edge of a forest


these woods are not lovely

though they are dark and deep

and you have never been 

a frontierswoman

but every day now

you take a walk in the woods


you take no heed of my warnings

it is a wilderness

without trails, without paths

without ways of going and ways of returning

only traces of steps

wild creatures have trod before you


I want to follow

to accompany you

to walk beside you

but as frail as you are

you leave me far, far behind


when you return

you cannot say where you’ve been

or what you’ve seen


and I know

against my wishes

you will venture forth alone again

tomorrow, and the next day,

and the day after


and I know

that each day

you will wander deeper into the woods

without destination, without purpose

driven, impelled, incapable of stopping


and I know

one day

soon

all too soon

you will not return

 

Comments

  • A. Marie
    A. Marie Member Posts: 118
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    Beautiful, Jeff. Thank you.
  • Jack Z.
    Jack Z. Member Posts: 14
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    Nice job, Jeff.  Having a spouse with this disease is hard.  Very hard.

    Thanks,

  • Joydean
    Joydean Member Posts: 1,497
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    Jeff your poem is beautiful and yet so very true, also heartbreaking. None of us can stop this darn* disease no matter how hard, all we can do is take care of our love one and do the best we can. 

    Thank you for sharing. And I’m so sorry!  

  • M1
    M1 Member Posts: 6,719
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    Echoes of Robert Frost Jeff.  We all have promises to keep? Thanks for sharing it. I'm sorry it's so painful sometimes. Guess that's why I'm awake at 2am....and here on these pages.

  • ButterflyWings
    ButterflyWings Member Posts: 1,752
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    Beautiful. Tragic. True.

    Thank you for sharing this. The sadness has overtaken me the last few days as well. Needed to come up for air. I appreciate your perfect timing and poetry giving voice to my reality too. Stay strong.

  • Ed1937
    Ed1937 Member Posts: 5,084
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    Jeff, you nailed it. Thanks for sharing.
  • DJnAZ
    DJnAZ Member Posts: 139
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    I also believe I am rather resilient as a caregiver. I accept that dementia has sucked  life from my wife and emotion from me. Your beautiful words, however, made me cry. After I read your poem I went into the room where my best friend was just sitting. She looked so lost and alone. And it reminded me that she is deep into her woods and not going to return.
  • JoseyWales
    JoseyWales Member Posts: 602
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    Beautifully written, and ever so sad. 

  • ImMaggieMae
    ImMaggieMae Member Posts: 1,010
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    Jeff, thank you for posting this. It has been a sad couple of days for me too and your poem expresses it so well. This is all so unbelievably sad. For all of us.
  • Paris20
    Paris20 Member Posts: 502
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    Jeff, I live in a home surrounded by woods so your words really resonated. Thank you. Only someone who is going through the horrors of watching our LOs disappear into those woods can understand what we face.
  • Sarai
    Sarai Member Posts: 16
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    Beautiful poem. My dh has been sleeping 21 hours a day since October.  Called 17 psychiatrists and can't get an appointment to treat depression.  Neuropsychologist won't give a dementia diagnosis until the depression is under control.  So life is now sleeping all the time, coming downstairs twice a day to eat, then returning to bed. No medical help except pcp. So overwhelming.  I totally understand how you feel. Jeff
  • Joe C.
    Joe C. Member Posts: 944
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    Jeff, Your poem certainly hit a never with me. Very accurate description of this journey.
  • LeBret
    LeBret Member Posts: 11
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    Yes ...
  • storycrafter
    storycrafter Member Posts: 273
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    Jeff, this is the most heart touching metaphor and beautiful poem. Thank you for sharing it with us. It connects me with something so much greater than myself. ~Helen
  • OrganizerBecky
    OrganizerBecky Member Posts: 32
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    Beautiful and says it all. Thanks for sharing
  • piozam13
    piozam13 Member Posts: 72
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    true.  sad.  expressed beautifully.

    take care of yourself Jeff

  • LauraPaul
    LauraPaul Member Posts: 12
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    Thank you so much for giving voice..words to my pain.
  • ThatGuy
    ThatGuy Member Posts: 1
    Second Anniversary First Comment
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     Thank you.  I needed this today.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more