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I will never been the same person

I took care of my favorite uncle (who had dementia) for 2 yrs. He passed away last November.

Now that I'm back in the state I live in, family, friends, co-workers are wondering why I'm not "acting" like the "same person" I was 2yrs ago. I keep saying "because I'm NOT the same person....duh"

I'm so tired of telling the same story I'm actually thinking of buying index cards with the story already written on them and let them read all about it.

Nicole


Comments

  • Love&Light
    Love&Light Member Posts: 57
    10 Comments First Anniversary
    Member

    I found myself in this situation over the weekend. We had a lovely long overdue dinner party, and I was catching up with people I hadn't spent real time with since the pandemic.

    I heard myself telling the same story over and over. At one point, I said to myself BAH, I am tired of this sad, and exhausting tale. And I just stopped talking about it and focused on what was going on in their lives.

    I wonder how long it will define me.

  • TessC
    TessC Member Posts: 53
    Ninth Anniversary 10 Comments
    Member
    2 years is a long time and a lot has happened during that time. I wonder why these people think you should be the same person after 2 years? Even in the best of times with no worries and hardships, a person changes in 2 years. At least I would hope so and for the better, too. Best to you. You did a wonderful thing for your uncle.  Tess
  • abc123
    abc123 Member Posts: 1,171
    Eighth Anniversary 1000 Comments 5 Care Reactions 5 Likes
    Member
    Dear Nicole, I’m sorry the people in your life don’t get it. They have no clue what you’ve been through. I find that unless someone has actually been a hands on caregiver they will never understand. The average person knows all most nothing about any type of dementia. You may not be the same person you were before but I’m betting you will be stronger, wiser and more patient.  Take good care of yourself.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more