Have any questions about how to use the community? Check out the Help Discussion.

Every small win gets followed by a bigger hurdle

Just venting a little, again...It seems like every time I overcome a caregiving hurdle, a new one is right behind. Such is the Game of Dementia, I suppose...

Get that POA signed. Done. Win! Doh! It's not valid to sign for her to sell her home due to absurd real estate laws where the property is. Ugh.

Incontinence getting worse. Finally convinced her to wear depends, first at night only, now pretty much 24-7. Win! Now she's just lazy (or just doesn't realize it, hard to tell, maybe a little of both) and would rather wet herself in the depends instead of using the bathroom. This causes the depends to leak and wet her clothes, the furniture, etc. Ugh. (Constantly prompting her to use bathroom, etc. is only slightly helpful, unfortunately). Now put pads down anywhere she sits just in case. It's the new decor around here...

These are just a few examples. And I know some of you are going through much worse, and it's certainly going to get worse for me, too. But talking about it here makes me feel a little bit better. I love her and I'm doing my best to take care, but dang it can be so frustrating at times.

Sorry for the rant.

Comments

  • May flowers
    May flowers Member Posts: 758
    500 Comments Third Anniversary
    Member
    Rant away! It feels like a constant game of whack-a-mole.
  • toolbeltexpert
    toolbeltexpert Member Posts: 1,583
    Sixth Anniversary 1000 Comments 100 Care Reactions 100 Likes
    Member

    RW76 rant away, I feel your pain, and you say so much we all want to say.

    I know you're going thru the hard stuff, but your love for your dm will carry you thru. Your a great care giver!!!!

  • ChicagoGal
    ChicagoGal Member Posts: 28
    Second Anniversary 10 Comments
    Member
    I totally understand how you feel - and ranting is definitely required.  I am constantly chasing down one thing after another.  Sometimes I am simply amazed how a new issue/challenge comes up when I was fully convinced that I covered all the bases.
  • mommyandme (m&m)
    mommyandme (m&m) Member Posts: 1,468
    1000 Comments Fourth Anniversary 100 Care Reactions 100 Likes
    Member
    Hear that!  Definitely a maze.
  • GothicGremlin
    GothicGremlin Member Posts: 858
    Fifth Anniversary 250 Care Reactions 500 Comments 100 Likes
    Member
    All of this -- so true! And ranting to people who understand just feels good sometimes.

    Every time I have a success, I think - "Ha! Take that, Alzheimer's! I win!" Alzheimer's beats me again - usually over something that never occurred to me could happen. I end up feeling like that Chumbawamba song "I get knocked down, but I get up again, you're never gonna keep me down!"

    It really is never ending.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more