Questions about Lewy Body

KISSGma66

I've been my Mom's caretaker since her diagnosis in 2018. We started off with just dementia. In October of last year she was diagnosed with Lewy Body. She was recently released from Hospice care because she started eating again and gaining weight. In home health came in but cannot provide physical therapy because "there is no goal" to be reached. While in hospice she also developed foot drop. My question to anyone with dealing with lewy body, are there specific experiences I can do with her to help with the rigid limbs and pain?

RIM

This is a link posted previously about the disease.

 https://youtu.be/wCJPv0eXeQk

Iris L.

Dementia with Lewy Bodies is often associated with Parkinson's Disease.  That might explain her pain and stiffness.  There are a variety of treatment for PD, although at this stage you seem to be primarily at comfort care.  Ask the doctors about what you can do to provide comfort medically and through non-medical means.

Iris

jfkoc

My husband's path was MCI>Parkinsons>LBD.

www.lbda.org Was very helpful both online and on the telephone.

This book was a lifesaver'

Dementia with Lewy Bodies and Parkinson's Disease Dementia: Patient, Family, and Clinician Working Together for Better Outcomes

by Dr. J. Eric Ahlskog MD PhD

Michael Ellenbogen

IIf you want I can put you in contact with my friend  Angela Taylor  who works at the levy body association.  She is great. S

JJust send me a direct essmail as I forget to come back to these .