What to say?(3)

abc123

Hello everyone! I hope everyone is doing as well as possible. I think of you all everyday. 

This morning Dad and I had a meeting with the two caregivers and a hospice nurse. Mom is declining and hospice has changed up her meds. The purpose of the meeting was to make sure everyone is on the same page. Mom is losing weight daily. She eats only twice a day. Pocketing food has become a major cause for concern. Her nighttime meds are now in liquid form only. She is so thin, skeleton like. Looking on the bright side of things, she still watches the birds and she likes to hold my hand. On a good day she will make duck lips at dad and give him a kiss. This morning she told the nurse and hospice tech to “Get out of here!”!!!!  She had had enough of them moving her around! She rarely speaks but managed to put a sentence together. 

Quilting brings calm

Abc123-  many people here have been wondering how you and your family were doing,  

I’m sorry your Mom is not doing well.  

toolbeltexpert

ABC I sorry to hear about your mom's progression, that's a good type of meeting to have when so much is happening. I have missed you here and continue prayers for my forum family.  I am glad your mom can still find some pleasure in watching the birds and giving air kisses.

Joydean

Abc, you and your mom are family have been on my mind and in my heart. I’m so sorry your mom is declining. So happy for her that she still enjoys watching her birds. I think watching my birds is very relaxing, I have a lot of hummingbird’s and little blue birds. For me they are a gift from God to enjoy and feed. I had to smile at “mom makes duck lips “, that’s so sweet. You and your mom and family are in my prayers daily. Please take care of yourself along the way. Thank you so much for letting us know.

May flowers

Glad to hear from you, ABC! 

It sounds like a good meeting at least as far as making sure everyone is clear on what is happening. What kind of medication is your mom on? 

M1

Glad for the update abc. Hope everyone is on the same page. These have to be difficult days and we have been thinking about you.

​fesk

abc123, I'm sorry things are progressing but glad to hear your mom is still having good moments and finding enjoyment.

Keeping you all in my prayers.

mommyandme (m&m)

I too have been wondering how you and yours are.  Thank you for sharing your update. I’m very sorry for your mom’s decline.  She sounds somewhat peaceful at times, I hope her comfort and peace will ease your minds.  My thoughts are with you.

jfkoc

Thanks for the update...

abc123

Thank you for the support! It’s really nice to check in with you all. I’m going to try to make it a point to stay in touch and up to date. This forum is my backbone. 

Momma’s meds have been rather simple. Ropinirole for restless leg syndrome, lorazepam for agitation, Celexa to keep her mood evened out, Benadryl for itching, and Tylenol with Codeine for pain. At night we have switched to liquid Morphine and liquid Ativan. She is eating and drinking a lot less. I wish she could stop losing weight because it is so upsetting for dad to see and she’s actually getting smaller everyday. My sister is supposed to come today, she hasn’t seen momma in two weeks. I warned her about the drastic weight loss. I’m trying to contact my brother to get here soon. I know this will upset him terribly. I feel like momma is waiting and holding on to see my siblings here together and at peace with each other.

I had an hour long session with the social worker this week. That helps a lot.

Recently I got to go out to hear two of my favorite bands perform and really enjoyed myself. The music and the musicians! They’re young and so much fun! I love them to pieces! I work in my yard to unwind. It’s looking good but the heat is a real challenge this summer. The dogs are fine and continue to be a source of entertainment because they are clowns! Major clowns. 

Hoping you all have a peaceful Sunday. 

ButterflyWings

abc- so wonderful to hear your update about the music outing, your yard, and pups. Those self-care gems are so needed and you have done such heavy lifting for so long...I am happy you have been able to carve out some time and space for that amid your dear mom's progression and supporting your dad.

I hope that everyone continues to be more and more on the same page in this sacred and difficult part of the journey. I'll bet you are right, she may be holding on perhaps for a bit longer for purposeful reasons which does happen even with PWDs. It sounds like you are doing all that can be done to ensure her comfort and that is truly a priceless blessing. 

SusanB-dil

Thank you for the update. Thinking of you... ((hugs))