Have any questions about how to use the community? Check out the Help Discussion.

ButterflyWings

May flowers
May flowers Member Posts: 758
500 Comments Third Anniversary
Member
in I Am a Caregiver (General Topics)
Just checking in to see how you are doing. I know you had some challenging past few weeks. Hope everything is ok with you all.

Comments

  • M1
    M1 Member Posts: 6,788
    1,500 Care Reactions 1,500 Likes 5000 Comments 1,000 Insightfuls Reactions
    Member
    Adding my thoughts too.  Thanks MF.
  • ​fesk
    ​fesk Member Posts: 479
    Legacy Membership 100 Comments 25 Care Reactions 25 Insightfuls Reactions
    Member
    Also hoping all is well, BW.
  • abc123
    abc123 Member Posts: 1,171
    Eighth Anniversary 1000 Comments 5 Care Reactions 5 Likes
    Member

    Has anyone heard from her recently? 

    ButterflyWings you are loved! I hope you are safe and well.

  • oehlsena
    oehlsena Member Posts: 52
    10 Comments
    Member
    I am praying for you ButterflyWings.
  • abc123
    abc123 Member Posts: 1,171
    Eighth Anniversary 1000 Comments 5 Care Reactions 5 Likes
    Member
    TTT
  • M1
    M1 Member Posts: 6,788
    1,500 Care Reactions 1,500 Likes 5000 Comments 1,000 Insightfuls Reactions
    Member
    Getting more concerned as time goes on.  Does one of the moderators have any way of reaching out?
  • abc123
    abc123 Member Posts: 1,171
    Eighth Anniversary 1000 Comments 5 Care Reactions 5 Likes
    Member
    M1, I feel the same.
  • Quilting brings calm
    Quilting brings calm Member Posts: 2,484
    500 Likes 1000 Comments Fourth Anniversary 250 Insightfuls Reactions
    Member

    Since the search function here is difficult to manage… does anyone remember Butterfly Wings situation when we last heard from her? was there  a safety issue?

    I remember that her spouse used a nebulizer and that he had been recertified for hospice,  maybe that he was an elopement concern? 

  • abc123
    abc123 Member Posts: 1,171
    Eighth Anniversary 1000 Comments 5 Care Reactions 5 Likes
    Member
    TTT
  • Ed1937
    Ed1937 Member Posts: 5,090
    Sixth Anniversary 2500 Comments 500 Likes 250 Care Reactions
    Member
    M1 wrote:
    Getting more concerned as time goes on.  Does one of the moderators have any way of reaching out?

    They should have her email address. I hope she shows up soon. It's been quite a while since I remember her posting.

  • towhee
    towhee Member Posts: 472
    Seventh Anniversary 100 Comments 25 Likes 5 Care Reactions
    Member
    ButterflyWings last two posts were on July 14, if anyone wants to reread. Over the last three months a post was started on average once a week, but before that it was around twice a month.
  • mommyandme (m&m)
    mommyandme (m&m) Member Posts: 1,468
    1000 Comments Fourth Anniversary 100 Care Reactions 100 Likes
    Member
    Won’t she get an email if someone invites her to a “connection”? Maybe that would send an alert?
  • Ed1937
    Ed1937 Member Posts: 5,090
    Sixth Anniversary 2500 Comments 500 Likes 250 Care Reactions
    Member
    mommyandme (m&m) wrote:
    Won’t she get an email if someone invites her to a “connection”? Maybe that would send an alert?

    Great idea! I'll send her one.

  • Joydean
    Joydean Member Posts: 1,500
    1000 Comments Third Anniversary 100 Care Reactions 100 Likes
    Member
    M&M, that is a fantastic idea!! Hoping and praying Butterfly wings is well!
  • Rescue mom
    Rescue mom Member Posts: 988
    500 Comments Fourth Anniversary 5 Likes
    Member
    I’m among those worried. And it may just be my inability, but I never got any email or any kind of alert resulting from a connection request. Hopefully there’s some other way?
  • Ed1937
    Ed1937 Member Posts: 5,090
    Sixth Anniversary 2500 Comments 500 Likes 250 Care Reactions
    Member
    It's been about 31 hours since I sent an invite. Haven't heard anything yet.
  • mommyandme (m&m)
    mommyandme (m&m) Member Posts: 1,468
    1000 Comments Fourth Anniversary 100 Care Reactions 100 Likes
    Member
    Rescue mom,
    Not sure if maybe your email went to “junk mail” but I’ve always gotten one.  

    Thanks Ed1937 & Joydean.  Now we keep waiting. 

  • Olly_Bake
    Olly_Bake Member Posts: 140
    100 Comments 5 Likes First Anniversary
    Member

    The last post I recall that ButterflyWings made on someone else post was her post to abc123 about the passing of her mom (abc123 mom) on July 26, 2022. A post about her and her spouse, the last one I recall was the one below. 

    https://www.alzconnected.org/discussion.aspx?g=posts&t=2147561594

    Hope all is well ButterflyWings with you and your spouse.

  • Ed1937
    Ed1937 Member Posts: 5,090
    Sixth Anniversary 2500 Comments 500 Likes 250 Care Reactions
    Member
    I tried to send another invite to her. But it wouldn't let me. It only tells me that the invite has been sent. Maybe someone else should try. I hope nothing is wrong with her.
  • Ed1937
    Ed1937 Member Posts: 5,090
    Sixth Anniversary 2500 Comments 500 Likes 250 Care Reactions
    Member

    ttt

  • CatsWithHandsAreTrouble
    CatsWithHandsAreTrouble Member Posts: 370
    100 Comments 25 Care Reactions 25 Likes First Anniversary
    Member
    Thinking of you Butterfly Wings. Hope you're okay...
  • May flowers
    May flowers Member Posts: 758
    500 Comments Third Anniversary
    Member
    bumping again…Hope all is well, ButterflyWings
  • Babilv
    Babilv Member Posts: 19
    10 Comments First Anniversary
    Member
    I sure hope someone has heard from ButterflyWings, my prayers go out.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more

Community Guidelines


Click here to review the ALZConnected Community Guidelines

Categories