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The windows are all open now

I've said before that when I've been reading all the posts here over the years, they've been been like looking thru windows to the future.  The windows don't really open for me until I've actually experienced what was talked about.  I've gone thru one window into the next, and on and on from one stage of this disease to the next stage.

This morning my wife and I were looking thru the window into stage eight, until that widow opened and Pat flew through. She left me standing in stage eight today.  Now I understand and can relate to so many more of you.

Pat taught me so much in our 31 years.  She was teaching me up until she flew away.  She made me who I am today.  It's no joke that this EOAD experience was pure hell at times and I was clearly burnt out on caregiving.  But, this experience showed me that I love her more than I ever could have thought possible.  Our family is hurting and I feel broken.  I sure do miss Pat.  She was 62 and this picture was from a couple of months ago; things changed fast.

Steve.

Comments

  • saltom
    saltom Member Posts: 126
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    What a beautiful way of expressing your feelings.  Your and Pat were lucky to have had each other.  Our younger daughter, a few years younger than your Pat, has been diagnosed with EOAD.  Her husband sounds a lot like you and I grieve for both of them. Your post has been a great help to me.  I'm so sorry you are feeling broken and hope your memories will help you in your grief and healing.
  • Mint
    Mint Member Posts: 2,680
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    Steve I’m very sorry for your loss of Pat.
  • John1965
    John1965 Member Posts: 104
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    I’m sorry for your loss. Your post was both elegant and poignant. You have my sympathy.
  • M1
    M1 Member Posts: 6,724
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    I am shocked 60F, this was unexpected was it not? And sorry and relieved for you at the same time. That is a wonderful picture.

    your love for her and dedication came through in every post.  Peace to you.

  • June45
    June45 Member Posts: 365
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    (((Steve)))
  • Ed1937
    Ed1937 Member Posts: 5,084
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    Steve, I'm so sorry. Nothing prepares you for this, or even comes close. Sending strength for the coming days.
  • Joydean
    Joydean Member Posts: 1,498
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    Steve so sorry for your loss. The picture shows a beautiful couple. Prayers for you and your family. Your expression of this experience is beautifully written. Blessing and strength for you and your family.
  • BethL
    BethL Member Posts: 839
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    I'm so sorry for your loss. Lovely photo, lovely lady.
  • Jeff86
    Jeff86 Member Posts: 684
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    Heartfelt condolences to you, Steve, on your Pat’s passing.  You have been a warrior caregiver.  I hope the coming weeks and months will bring you peace.
  • JoseyWales
    JoseyWales Member Posts: 602
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    What a beautiful way of sharing your loss. Thank you for the picture, you look like a fantastic couple. She looks so good in that picture.

     My thoughts and prayers are with you as you move through this new stage. 

  • Hoot619
    Hoot619 Member Posts: 342
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    Losing your Loved One is hard, I appreciate the way you told us.   May you find solace in our replies, I will keep you in my prayers.
  • Last Dance
    Last Dance Member Posts: 135
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           Steve, so sorry for your lose.                                                                                                   I almost didn’t read your post today, I never thought of the windows being closed then open so that our Love Ones could leave this cruel disease behind. May you find some peace from the fresh air that now will come in, through the open window. May your broken heart, and mind remember the good times and forget the bad times, may you find solace knowing that even in your struggles to take care of her that you were her guardian angel, and made her journey with This cruel disease much easier to bear. God’s Blessings to you and your family. Richard  

  • jmlarue
    jmlarue Member Posts: 511
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    We think we are prepared. Our brain might be, but our heart never is. Sending sincerest condolences.
  • ImMaggieMae
    ImMaggieMae Member Posts: 1,016
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    I am so sorry for the loss of your dear wife. Your announcement was beautiful and loving. Thank you for posting the photo as well. She was a beautiful woman. Please take care of yourself at this difficult time.
  • toolbeltexpert
    toolbeltexpert Member Posts: 1,583
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    Steve I am sorry for your loss. Your windows are all open. May it be calm and peaceful now. We'll done good and faithful caregiver.
  • jfkoc
    jfkoc Member Posts: 3,776
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    much love sent...........
  • eaglemom
    eaglemom Member Posts: 524
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    You've expressed yourself beautifully. Thank you for sharing the picture.

    eagle

  • Gig Harbor
    Gig Harbor Member Posts: 564
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    Steve I am so sorry for your loss. You expressed your thoughts beautifully in a way I have never thought of.
  • dayn2nite2
    dayn2nite2 Member Posts: 1,132
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    I'm so sorry for your loss.  The picture of the two of you is wonderful.  Please get some rest and take care of yourself.  We are here if you need us.
  • A. Marie
    A. Marie Member Posts: 118
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    60, I'm so very sorry for your loss. But you described the process beautifully. And I hope you'll think of your wife as flying through that last open window to freedom.
  • Jo C.
    Jo C. Member Posts: 2,916
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    May her spirit have flown to absolute peace and absolute joy.   Your writing is lovely as is the photograph.  I send heartfelt condolences to you on your deep loss.     You have gone the distance and  thensome and have been her ever faithful love, husband and best friend and the carer of her person through the difficult times, always her advocate.

    May you find some comfort in knowing how much you gave of yourself and that you made a huge difference for your beloved wife.  Your vows have been honored beyond expectations.

    J.

  • Buggsroo
    Buggsroo Member Posts: 573
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    I am so sorry Steve, I loved the analogy I am so glad she got to fly.
  • David J
    David J Member Posts: 479
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    Sending my condolences, Steve. Your post is a good way to look at the inevitable emding of all this.
  • abc123
    abc123 Member Posts: 1,171
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    Dear Steve, I am very sorry for your loss of Pat. I’ve learned through the years that nothing can really prepare us for the loss of a loved one, especially our spouse, our life partner. I’ve learned a lot from you and I’ve always appreciated you. You and your family are in my thoughts and prayers.
  • Pat6177
    Pat6177 Member Posts: 442
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    Steve, my sincere condolences for your loss. I love the window analogy and the picture of the 2 of you. Be gentle with yourself over the upcoming weeks.
  • Joe C.
    Joe C. Member Posts: 944
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    Steve, My sincere condolences on the loss of your wife. May you find some peace in the days ahead.
  • Just Bill
    Just Bill Member Posts: 315
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    When she flew out that window so did you. She went on one adventure and you on another. Stay positive, stay focused enjoy the gift of life to the fullest right to the end. You will see her again then. Until then she is alive in your memories. Imagine she is watching over you so you don't do anything dumb and you don't dwell on sadness too much. Fare well on your new adventure.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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