Planning with parent with early onset

khurwitz

Apologies for cross-posting. My (28f) mother (54) was recently diagnosed with early onset Alzheimer’s. My father, siblings, and I already know her wishes for end of life care, but I want to have a discussion with my parents and siblings about what my mom envisions for her life over the next 5-10 years. We obviously don’t know how fast this will progress, but I want her input now in how her life will be once she has more trouble making decisions, remembering, and getting around. She is fully aware of her diagnosis, is open to planning for things in the future, and hates being coddled, so she will want to be directly asked these things. How can we approach this conversation? What are some questions to ask to determine her wishes for her quality of life over the next few years? Some topics I’ve already thought of relate to driving, home care versus institution, tans travel. Any ideas/help please!

babyface68

How is your mom doing.  I was just diagnosed with this awful disease at 54. Not many of us. I have vascular dementia.  Don't no how long i will be here.

Iris L.

Welcome baby face.  This is a small board but there are a few who post.  My diagnosis is cognitive impairment not otherwise specified.  Life is difficult but there are things one can do to make the journey less onerous.

Iris L.