Have any questions about how to use the community? Check out the Help Discussion.

I Miss My Mom…

I just want to share that I miss my mom, and no words can sufficiently, accurately describe the depths of pain I have been feeling. She’s here, and she’s not. I need her right now, more than ever, but she simply cannot be there as I know she’d want to and was before her symptoms started to ramp up (she’s stage 6 right now). 

I really just needed to share that. 

Comments

  • Marp
    Marp Member Posts: 170
    Legacy Membership 100 Comments 5 Likes 5 Care Reactions
    Member

    I'm so sorry.  I had the same kind of relationship with my mom.  She didn't have Alzheimer's but I think I would be struggling like you if she had - I need her & she wants to be there but can't be.

    Big, big hugs to you!

  • ninalu
    ninalu Member Posts: 132
    Fifth Anniversary 100 Comments
    Member
    Hi CJJE,
    I'm so sorry that your dear mom is not able to be with you now as she used to be. The losses are very, very difficult indeed. I hope that you and she find ways to be together now, in the present moment. 

    Warmest thoughts to you both.
  • Ed1937
    Ed1937 Member Posts: 5,091
    Sixth Anniversary 2500 Comments 500 Likes 250 Care Reactions
    Member
    CJJE wrote:

    She’s here, and she’s not.

    I'm sorry. But what you really need to do is focus on the first part of that. "She's here." If you focus on the latter, it will not be kind to you. It's true that she can't help you solve your problems, or offer good advice, but you can still find ways to interact with her to make good memories. Maybe you can play some simple games with her. Maybe you can reminisce with her about the old times she'll remember. Maybe you can listen to music with her. There really are a lot of ways to enjoy her presence, even though she is not the "old her". You have to focus on what's left, not what's lost. I know it's not easy, but it's the best for both of you.


  • aquamarine74
    aquamarine74 Member Posts: 7
    Second Anniversary First Comment
    Member
    My mom is also stage 6 (verging on 7) and I feel the same—I miss her though she’s here. I am in my late 40s and I still feel like I need her. Sadly she’s aggressive so visiting doesn’t feel like I’m able to connect with the part of her that’s still here. It’s heartbreaking. Just wanted you to know you’re not the only one feeling the way you’re feeling. Hope that helps a little.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more