Have any questions about how to use the community? Check out the Help Discussion.

A couple of thoughts

On Regret

“How to hold regret tenderly:

I wish I would have done that differently,                                                                                             and,                                                                                                                                                  at the time, I couldn’t”                                                                                                                    

~  Syanna Wand 

On Selfishness

Not sure how many times I either said to myself or asked myself while caring for mom… am I being selfish?…was that selfish?…I’m just being selfish…

I see fellow caregivers here saying those things also… so I ask…

How can we possibly ascribe our actions as being selfish when we’ve selflessly given up our own lives essentially, to care, oversee, direct, entertain, supervise and comfort our LOs, among many other things.  

You, my fellow dementia warriors, are definitely NOT selfish!  

I hope you find some peace and comfort today in what you are doing and handling for your LO.      Jen

Comments

  • Arrowhead
    Arrowhead Member Posts: 362
    Fourth Anniversary 100 Comments 25 Insightfuls Reactions 25 Likes
    Member
    For some reason, self-doubt is a trait many people have. We often feel that we're not doing enough even though we're doing all that we can. When we don't see the results that we expect to see we tend to blame ourselves. We also desire to help others, sometimes to the point of neglecting ourselves. We need to be selfish at times to recharge ourselves so that we can continue to be selfless towards others. We need to learn to not be so hard on ourselves sometimes.
  • SusanB-dil
    SusanB-dil Member Posts: 1,149
    1000 Comments Third Anniversary 100 Likes 25 Insightfuls Reactions
    Member

    Thank you for your thoughts m&m and Arrowhead.

    I hadn't thought about it much, but we really can't do much else right now... probably not for the next few years?  And so we do what we can with what we've got, right!

  • May flowers
    May flowers Member Posts: 758
    500 Comments Third Anniversary
    Member

    Well said, M&M! I know I felt both of those things, but now in hindsight as we are trying to get back to life as before, I am amazed at how caregiving consumed so much of our time and energy. Even before he lived with us, there was not a day that went by that we didn’t think about him or handle something regarding his care. 

  • VKB
    VKB Member Posts: 336
    Legacy Membership 25 Likes 10 Comments 5 Insightfuls Reactions
    Member

    I feel you are right in saying that caregivers give so much of themselves.  Yet sometimes we do fall prey to selfishness because we are human and only God is perfect.  We can pray and pick ourselves up and start again without holding onto to guilt.

    I did it for 9 years, so I know.  It is a very hard job.  Caregivers are some of the best people in the world. They all need to get plenty of "Me Time" so they won't get burned out.  Rest is a necessity not a luxury.  

    Thanks for the encouragement to the many caregivers still working at one of the hardest jobs there is.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more