Have any questions about how to use the community? Check out the Help Discussion.

Can't give up(1)

Comments

  • Mckangel
    Mckangel Member Posts: 34
    10 Comments
    Member

    Hey there, it’s very late at night, at least for me, but I just read your post. Please stay on the forum, I WILL message you tomorrow. I am new at this too, but have had similar situations with my mother. You are not alone, please keep posting and reading on this forum. 

    -Angel
  • SusanB-dil
    SusanB-dil Member Posts: 1,214
    1000 Comments 100 Care Reactions Third Anniversary 100 Likes
    Member

    ooh, FloydSnax - so sorry to hear that news.  That was more than freakin' frustrating, for sure!!

    Since not fully involved, does sister know the extent of mom's limitations?  At the very least, it is giving you a bit of respite to just breathe a little. (maybe even re-think a facility - she really wouldn't be alone.)

    Don't beat yourself up about yelling and trying to get her to see what she did. You responded to the moment. We (DH and I) have found ourselves attempting to reason with MIL. Yeah, we know better, but yet.... Can't reason with a cat, right?!

  • FloydSnax
    FloydSnax Member Posts: 96
    10 Comments First Anniversary 5 Care Reactions
    Member

    Angel

    I'll never leave this site. It has saved me from the deepest hole I was in. And I've learned a lot. 

  • Mckangel
    Mckangel Member Posts: 34
    10 Comments
    Member
    My mother called me unexpectedly on New Years Day, and began berating me for “putting her in AL” I went into defense mode and told her I did not appreciate her calling me on New Years Day and chewing me out. She called me Sunday afternoon and woke me from a sound sleep to ask me how long she was”paid up for” at the facility and that she was coming home. I asked her to tell me what was upsetting her, but she wouldn’t say. Bottom line is, we as children, (I am in my fifties, lol) do  not always know what to say, and we are only human. I’m just starting on this journey as my mother’s decline to the extent it is was pretty sudden. This awful dementia doesn’t come with set instructions that always work for everyone all the time because we and our LO are all different and dementia seems to be so multi faceted, but there is so much great information , support and tips here.  I’m glad you are getting a bit of a break for a day or so; I hope you make the most of it.  Update-a nurse at the AL where my mother is told her she can come and go as she pleases.Yikes, I wish that hadn’t happened.  My mother’s sitter may possibly take her by her home tomorrow- I don’t know wether to trust my mother to agree to return to the facility after a visit to her home. If anyone can handle her, it’s this lady. My head is spinning right now, and I plan on just taking it hour by hour. I injured my finger on my dominant hand this afternoon, ironically while talking to the sitter regarding my mother, (loading groceries and shut the trunk too soon) so I’m not thinking real clearly because, gosh, I am hurting. Just please don’t be hard on yourself; keep exploring this forum and reach out  and vent when you need to.
  • FloydSnax
    FloydSnax Member Posts: 96
    10 Comments First Anniversary 5 Care Reactions
    Member

    Susan B

    Yeah, unfortunately my sister is fully aware. And her two adult children who I thought would have my back (my mom's too) but it is what it is. Who really would want to deal with this? I wish I wasn't. After this last incident, my sister did take her for two nights so.... I don't know. All I ended up doing was sleeping most of the time. But that was fine. Although I almost worried more that she was in my sister's care. Can't win.

  • prov1kenobi
    prov1kenobi Member Posts: 47
    10 Comments
    Member

    I just woke up at 3 am.I went to bed at 10 pm. So, it is pretty early for me. As i am sitting in a recliner, I realized that my life as a caregiver is pretty easy compared to what other caregivers go thru. But, when I heard my LO wandering around upstairs at 3 an, I realize how quickly things could change. There is a Jennair cook top up in the kitchen (with no knobs), lots of little appliances and knives…fire wood, gas filled lighters, newspapers…all sorts of stuff, all of which could lead to disaster. He uses spray on fire starter alot to light wood in a fireplace. I am noy being clear in this post. What I am saying is that there is all sorts of trouble that my LO could get into at the drop of a hat. Nothing has happened yet, but I fear that it could happen. It is very scary. 

    I guess that we need to really prioritize safety issues in this house….before something serious happens. There he goes again ! He is wandering around in his hunting and gathering stage just looking for trouble.

  • Gypsy J
    Gypsy J Member Posts: 10
    First Comment
    Member

    Thank you for sharing this story, I just joined this forum and found your post. I needed to read this just now. I too just this weekend had to take my DH to emergency room because of his erratic behavior. This has also forced me into the realization that at some point I will no longer be able to care for him. Like many others I suppose we hoped to be able to keep them at home. This is not the reality I had wanted.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more