Have any questions about how to use the community? Check out the Help Discussion.

Good read on bvFTD

Comments

  • Twin Mom
    Twin Mom Member Posts: 81
    Seventh Anniversary 10 Comments
    Member
    Thanks for the article.  We are dealing with bvFTD...sure wish this were our problem...always worth a try in having the already existing MRI re-read by a neuroradiologist.
  • Ed1937
    Ed1937 Member Posts: 5,084
    Sixth Anniversary 2500 Comments 500 Likes 250 Care Reactions
    Member
    Wishing you the best.
  • Twin Mom
    Twin Mom Member Posts: 81
    Seventh Anniversary 10 Comments
    Member
    Thanks!  It is definitely a journey with lots of twists and turns.
  • Jo C.
    Jo C. Member Posts: 2,916
    Legacy Membership 2500 Comments 100 Insightfuls Reactions 100 Likes
    Member

    Oh my; now I wonder if that was missed on the multiple MRIs.  However, since my LO with bvFTD has died, too late. I always wonder if I missed things or failed to do something that should have been done, or worse; if I unknowingly did something in decision making that made things worse.  Will never know.

    Thank you for this interesting article.

    J.

  • Ed1937
    Ed1937 Member Posts: 5,084
    Sixth Anniversary 2500 Comments 500 Likes 250 Care Reactions
    Member
    Jo C. wrote:

     I always wonder if I missed things or failed to do something that should have been done, or worse; if I unknowingly did something in decision making that made things worse.  

    Jo, of course I wonder the same thing. If I had made one different decision, maybe she would still be here. But no guilt because I did what I thought was best. I don't lose sleep over it.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more