Ventilation

FloydSnax

Venting again. There is no battling this disease. No one knows or no one cares. There is no getting better. There is no cure and there isn't even an understanding on how to maintain it. We're all the hopeful idiots. Hoping for normalcy. Little glimpse of what was. But it's gone. If it isn't yet, it will be soon. My mom is completely gone. We put her on a new medication to combat the "Sundowning" and it did! Only it changed it from 4 o'clock every day, to all day. She's 91. Why am I trying to fix the unfixable. Why am I the only one who cares. When I mentioned something along those lines to my sister, she barked back, "Cuz you live with her!" What? Did she mean I should abandon her? Like she has? 

The only way this would all be worth it, would be if there was a god. If everything I've been taught about this myth was true. But it isn't. Kind and loving? Save it. 

We're the ones that need medication. Dealing with this sh-- every 5 minutes. Saying the same responses...pretending, lying, maintaining the insanity, not sleeping, not living for us...feeling guilty for even saying these things. I must have been a murderous son of a bitch in a past life. Usually when I vent, I feel better. Not now. I feel worse. What does that mean?

ASJ

I can totally empathize with you. I feel the exact same way. My mom died from AD in 2016 - but the mom I knew was gone by late 2013. She became a shell of her former self - 90lbs, unable to walk, talk, eat. Now my dad is going through the same thing - he can still recognize me sometimes, but is basically just waiting to die - can barely talk, appetite has gone, keeps falling down. He was the primary care giver for my mom and I recall many conversations with him about him praying that this never happens to him. He was fine until last September when he fell and hit his head - now he seems to be at late stage 6 / early stage 7.

I know he does not want this - but there is nothing we can do but watch him wither away. Why isn't there a more humane way to deal with this? We treat our pets with more humanity. POLST doesn't go far enough.

mommyandme (m&m)

I care, we care, yet I know that’s of little help when you’re in the thick if it.  It’s such a crappy place to be…no answers, no real fixes that can improve the situation, just bandaids while we wait for the inevitable. I’m really sorry! 

Try to take the best care of yourself that you can. Get away more? 

FloydSnax

M&M

Thank you once again. I haven't kept up on anything. I've actually never been in worse health. I just thought it was normal aging (I'm 55) but I can barely walk a couple blocks! A couple flights of stairs...with groceries...forget it. I was an athlete. Been laying down since before Covid. I always heard "Sitting is the new cigarettes..." then what's laying? I know what I have to do. I know I need to walk/run...yoga. And I won't. It's like I'm waiting. For the end of this horrible stage of my life. To be free. Like its gonna be so traumatic that its gonna change everything about me, for the best. Thats what I'm hoping for. But things never work out as we plan. I'm sure I'll keel over days after my mom does. I'm not complaining (tho it probably sounds like I am) I love my mom and almost feel like I owe her. I DO owe her. I have this ability of taking care of her without believing its actually happening...Like every situation just rolls off my back. But once every couple of weeks, I can't escape it. While I've been typing this, my mom keeps coming to the door telling me how "They" are changing this or that and how it will be hard to fool "Them" and just nonsense that she sees on tv that she thinks she's a part of...so I put on her favorite radio station thinking it will break her constant train of thought, and it hasn't. Enough to drive someone....Hahaha I can't even joke. Thanks for listening M&M    

FloydSnax

ASJ

I can't think of anything quite as bad as this? Sometimes I think I'm in a dream. Actually, nightmare. Maybe we can find peace on the other side of this. Still trying to be hopeful. Some people never learn, and I should know.

SusanB-dil

It probably means you are frustrated, as are most of us. And some days are worse than others. I hate 'this'. I did not sign up for this crap. But I don't know what I would do without my faith. Life isn't fair and 'this' bites in sooo many ways. But gotta have something to lean with. I'm frustrated, too. Was not a good week. Yet, here we are. I care. It is why I try to help, for what little I can, for what it's worth, right...  I hope you do get back into your swing of things. I know, we are muddling through best we can. Hope you are having a at least a better day, now, even a little better is good.

Do tell doc the new med is worse. We had that happen a few weeks ago. Stopped the new med, better without.

Oregano

Floyd,

I'm sorry about your situation and understand the utter despair you must be in. To feel powerless against this unbelievably cruel enemy called Alzheimer's is nothing short of misery. We all know the saying that knowledge is power, and I'd like to share what knowledge I have with you to point you in a direction to research for yourself.

I believe the source of Alzheimer's/Dementia to be fungus growth inside the brain. I will post a study regarding autopsies of Alzheimer's patients beneath this post. My first post on these forums 5 months ago was regarding a new anti-fungal protocol that has been working wonders across several communities. I myself found a complete elimination of brain fog and negative, intrusive thoughts that I suffered all my adult life.

This protocol is NAC + oregano oil (capsules) + black seed oil. And while it is a potent anti-fungal combination, it's hardly the only approach that's been taken. A member of this forum, Lane Simonian, was the first one to respond to my initial post. If you check their profile, you will see their testimony of using rosemary essential oil to markedly improve their mother's quality of life.

Rosemary oil, like oregano, is an anti-fungal. I truly believe this sort of approach is what we need to be taking, and that steps to remove mold (from both ourselves and our households) is the best offense we have against this enemy.

Can Fungus Cause Alzheimer's?

https://www.alzheimers.net/1-18-16-fungus-cause-alzheimers

"A Spanish research team conducted a study published in the journal Scientific Reports, suggesting that an infectious microbe may cause Alzheimer’s. Researchers analyzed the blood vessels and brain tissues of 11 deceased people that died with the disease. They found “several fungal species” in all of the deceased but no evidence of fungus in the 10 Alzheimer’s-free people they examined."

"Currently, most researchers believe that Alzheimer’s is caused by brain plaques built up by toxic proteins, but drug trials targeting these plaques have been largely unsuccessful, leaving some to question the relationship.

Researchers believe that the finding of several different fungal species could explain “the diversity observed in the evolution and severity of clinical symptoms in each Alzheimer’s patient.” Additionally, a fungal cause would explain the slow progression of the disease and the inflammation caused by Alzheimer’s, which is a natural response to fungi."

FloydSnax

Oregano

Very interesting. How fungus even works its way to the brain is insane. Finds a nice spot and continues to destroy. If your concoction eliminates this fugus/mold... It's something we all need to take or at least look into. I hope the research doesn't become more profitable than the cure. A doomed society

Oregano

The body's immune system response against fungus is based on genetics, which is the reason why I believe Alzheimer's is a genetic disease. It is said, for example, that redheads in particular are vulnerable to fungal infection. There are other factors that influence it as well, of course.

Eye floaters, dandruff, whiteness on the tongue--these are different type of fungi and signs to take action. There's a correspondence between Alzheimer's and UTIs, for example, and to me that comes as no surprise.

As far as expenses go, the fact that there are so many natural antifungals out there that cannot be patented is one of the many reasons the connection between fungus and Alzheimer's isn't often researched or discussed. Medical companies stand to lose a lot and gain nothing from it.