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Amy Joy

Dear Amy Joy, it was very wise of you to see your doctor.   My heart goes out to you; I am sorry to hear you may possibly need surgery; let us know how things are going and what you decide.

It is also very wise for you to begin looking for a good supportive place to live as in Memory Care.   This will be very helpful for you both now and in the future.  You will be safe, secure and many people actually thrive in such a setting and even make friends.

I think it sounds as though this needs to be done as soon as possible.

If you have someone to be with you in this planning, it would be excellent for support and being able to have someone help you to ask the right questions of possible settings you feel would be a good fit.

Also, Amy Joy; I do not know if you have a Durable Power of Attorney for Healhcare which names a person that you would want to make decisions for your healthcare IF you were not able to do so. This is something that all of us should have.  I have one with someone named should something happen to me and I could not speak for myself. Kind of like a little safety net.

If you need helpful input for doing a Power of Attorney, if you do not know a lawyer, perhaps the 24 Hour Helpline at the Alzheimer's Association could help locate a lawyer to do the Power of Attorney OR perhaps in your state you can do one without needing an attorney.  The Helpline number is:  (800) 272-3900.  

If you call the Helpline ask to be transferred to a CARE CONSULTANT.  There is no cost for this service.  Care Consultants are Social Workers who specialize in dementia.  They can help with so much and they are there to listen and support. You can call as much as you wish.

Let us know how you are, we will be thinking of you.

With a hug being sent your way,

J.

Comments

  • Amy Joy
    Amy Joy Member Posts: 90
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    Member

     Hi J!

    Hi how are you?

    Welcome!

    Thank you for your message.

    I had to have my operation. I had growths removal from my colon and rectum.

    I am in rehab in a nursing home.

    My nurse helped me with messages and sent up computer.

    I hope I can go back home soon.

    I can talk to you soon when I get better.

    Thank you.

  • Iris L.
    Iris L. Member Posts: 4,454
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    Amy Joy, I'm glad you came through your operation.  Keep healing, and get well soon!

    Iris

  • Lane Simonian
    Lane Simonian Member Posts: 352
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    Member
    Amy Joy, this is my wish for you, too.  
  • Amy Joy
    Amy Joy Member Posts: 90
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    Member

     Hi Iris!

    Thank you very much!

    How are you?

    I will know what is next soon.

    I am not making progress on new medicines.

    I’m still showing progression in dementia and mental decline.

    I’m now showing new signs of mental illness and been 

    Recommended to a seen mental help.

    I hope everyone has a nice night. 

  • Iris L.
    Iris L. Member Posts: 4,454
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    Amy Joy, you must allow time for your body to heal.  Are you able to eat yet, or are you on a restricted diet?

     

    What type of mental help has been recommended for you?

     

    Do you have a place to go after the nursing home?

     

    Iris

  • Jo C.
    Jo C. Member Posts: 2,950
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    Hello Amy Joy, l hope you have been healing well after your surgery.

    Since you are in rehab, the Social Work staff and nursing staff may be able to help you plan for the next step for your future arrangements to best suit your needs.

    We here all send you our very best and warmest of thoughts for all to go well for you and will be looking for your messages back to us.

    With a big hug being sent your way,

    J.

  • Amy Joy
    Amy Joy Member Posts: 90
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    Member

    Hi Iris! 

    Hi Hi c!

    Thank you your for nice messages!

    HOw is everyone doing? I hope all is fine.

    Today is a good day went outside and saw trees.

    Look like I won't be going back home for a little while longer.

    I'm taking tests and test for signs of heart failure. I had a monitor.

    I'm having medical issues and signs that dementia is progessed.

    I'm hoping to go back home soon.

    HHave a nice day and hugs.

  • Jo C.
    Jo C. Member Posts: 2,950
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    Hello Amy Joy; it is good to hear from you.  It sounds as though you are healing well after surgery.

    How are you feeling?   I am doing fine. 

     I know you prefer to go home,  but see that you are having some more tests.

    It must also be good to know there are nice nurses and others to be helpful, that is great.

     It must have been very nice to be outside and to see some trees.  Nature can be lovely.

     What state do you live in?  I am in California.

    Do you have a spouse or other relatives or friends that can visit and be helpful if you ask?

     I have a husband and four grownup children, but the children do not live close by.

    It has been a cold winter but spring is soon to come; then more happy leafy trees and flowers and blue skies.  Before too long we will see sunshine more and more.

     Thank you for writing and to letting us know how you are.   We are thinking of you.

     J.

      


      

      

  • muzicman
    muzicman Member Posts: 3
    First Comment
    Member
    Hello Amy Joy. It's good to hear from you. Know that you are in my thoughts. Wishing you good health and a speedy recovery!
  • Amy Joy
    Amy Joy Member Posts: 90
    10 Comments 5 Likes First Anniversary 5 Care Reactions
    Member

     Hi all!

    Thanks for all your support!  

    I’m continue to recover now at home but I’m still having some sides effect.

    I’m allowed home and still not able to take proper care of myself anymore.

    I’m starting to show more signs of struggle and mental decline.

    I’m taken to my special doctor this time.

    I now am needing to write most of all down.

    Have a nice day.

    Love

  • Iris L.
    Iris L. Member Posts: 4,454
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    Welcome back, Amy Joy!  It's good to know you are recuperating at home.  

    Do you have anyone helping you at home?  Are you able to simplify your life?  

    Take care of yourself.

    Iris

  • Amy Joy
    Amy Joy Member Posts: 90
    10 Comments 5 Likes First Anniversary 5 Care Reactions
    Member

     Hi Iris!

    Hope you are doing well! Thanks for kind message!

    I’m with family member I’m not allowed to live alone anymore.

    I have a visiting nurse come to house now.

    Then later the nurse for exercising.

    I have to use a walker when not in the house.

    I’m now trying to think for myself and still struggling to do much on my own.

    I won’t be able to drive ever again.

    How’s your day going?

  • Iris L.
    Iris L. Member Posts: 4,454
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    I'm hanging in there, Amy.  You sound like you have a lot of support.

    Iris

  • Jo C.
    Jo C. Member Posts: 2,950
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    Member

    Amy Joy, I hope you can find this to read.

    I am thinking of you.

    I am also sending you a big hug and warmest of thoughts,

    J.

  • eaglemom
    eaglemom Member Posts: 572
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    Member

    Amy Joy, you have been on my mind. Your body has to heal and you have a lot to process. Please come to the website whenever you feel up to it.

    eagle

  • Iris L.
    Iris L. Member Posts: 4,454
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    edited April 2023

    I wonder if Amy Joy can sign in to the new platform?

  • Iris L.
    Iris L. Member Posts: 4,454
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    Member

    Amy, if you need help signing on, call the Helpline (1-800-272-3900) and ask for Tech Support. Ask to have someone walk you through the sign-in.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more