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New Member - 2nd Parent With Dementia. Panicking a bit.

Hi all - I am glad I found this group. I am just beginning the dementia caregiving journey with my mom (mid stage) after losing my dad to Alz in 2012. I was also one of his primary caregivers. I guess I am feeling mostly right now like I don't want to do this again! I know too well the journey and I am feeling pretty exhausted and down about it all. The "I'm alone in this" feeling is the hardest part for me so I guess I am just here to read about others' experiences and share mine.  Thanks.

Comments

  • LaurenB
    LaurenB Member Posts: 211
    100 Comments Second Anniversary 5 Likes
    Member
    Good morning and welcome.  This is also my second round with a parent.
  • Ed1937
    Ed1937 Member Posts: 5,091
    Sixth Anniversary 2500 Comments 500 Likes 250 Care Reactions
    Member
    Hi chickadee. Welcome to the forum, but sorry for what you are going through. The fact that you don't want to do this again is easy to understand. Hopefully after posting for a couple of days, you won't feel so alone anymore. Reading other's posts and sharing your experiences is therapeutic.
  • chestnut chickadee
    chestnut chickadee Member Posts: 4
    First Comment
    Member
    Thank you. Yes, that is my hope.
  • chestnut chickadee
    chestnut chickadee Member Posts: 4
    First Comment
    Member
    Thank you for replying. I am sorry you are also having to be on this journey with both parents. It feels pretty overwhelming some days. How are you coping?
  • Smilescountry
    Smilescountry Member Posts: 109
    25 Likes 10 Comments First Anniversary 5 Care Reactions
    Member
    Hi!  I am fairly new to this forum, too, and my father is in the mid stages of Alzheimer's while my mother also has some cognitive decline, so I am dealing with two at once.  I decided early on to get some professional, one-on-one help.  My insurance pays for counseling, so I am using that.  I have two wonderful sisters who help, but I am the principal caregiver.  Because our mother was not able to care for our dad, and the two wanted to stay together, they are both in assisted living.  They are at a very nice place, and, while I still do quite a bit for them, I can always get a good night's sleep.  My husband and I spent a few years taking care of his parents and sister, and I know very well the "I don't want to do this again" feeling.  It would have been nice to have our parents stay with us sisters, but we are all older, too, and cannot take on that responsibility.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more