Also starting to help in an association

French

Hi everybody

I read that Ed began to imply in an association, me too ! I think I am not able to help others by speaking with them. It is too difficult to continue to speak about this desease. I wanted to help in another manner.

1 month ago the association we followed since my partner diagnosis (and that helped a lot when I had te repatriate him) called me because they need the help from somebody used to write projects so that to obtain money (I'm a researcher and spend my time to research... money for my team). The other board members in the associations are psychiatrist, geriatrist, nurse... they are not used with such work.

The project: 2 houses for 8 EOAD people each, with carpe diem method. sorry, it's Canada but in french https://alzheimercarpediem.com/lapproche-carpe-diem/lapproche-carpe-diem/

You remember how finding a place for my partner was impossible here. We really need special houses for EOAD.

I participate to forums, seminars on inclusive housing so that to understand how we can build these houses. The main difficulty is the financial and legal aspects. We candidated to a grant and obtained the first place. We now have money to pay somebody that will have time to start to build the project with us (we are all volounteers and working). Now we have to find a place, money to by it, and then the houses, a company to manage them... Our municipality is interested in the project and will certainly help with a plot of land in a new district. The hunt for sponsors has begun ! This is huge (it will take at least 4 years), but also very motivating.

Almost 6 months now. I begin to be better, but he is still always in my mind.

good news : I know that I will be able to stay in my house.  But I'm questionning everything: my work, my lifestyle... I would like to stop working or starting something new, but with 3 students to feed, it isn't the moment.

M1

French, congratulations on your hard work and what a great project--sounds like a great use of your talents.  I am glad to hear from you.  I imagine having something worthwhile to do helps in recovery.  I have been following Ed's posts too, and am thinking myself about how to foster new interests/ undertakings in order to lessen my isolation and grief (even though my partner is still with us).  It will take a while, I haven't found the right fit yet.  Hope your sons are doing well, too.

toolbeltexpert

I want to second m1. Bravo

Ed1937

French, that is fabulous! Thank you for working on that. It's important work, as you know there is a need. We could use you on this side of the pond.

M1, you will find your place when you have time to devote. There are a lot of different avenues that would appreciate the help, whether doing it on your own or with an organization.

Iris L.

What a wonderful way to contribute!

Iris

Ed1937

French, I followed your link. The program sounds really very good, but I wonder if you can get enough people to put in the time required to implement the goals? Hopefully the answer to this is a big "YES".

For anyone wanting to access the site, here is a live link. If you don't read French, copy the web address, then paste it into translate.google.com https://alzheimercarpediem.com/lapproche-carpe-diem/lapproche-carpe-diem/  

French

There is already one house on the carpe diem model in France, for EOAD. It has been built by Blandine Prévost who was diagnosed at 38. https://www.amadiem.fr/

But, yes Ed, you are right, buisness model is touchy. But here you can have a lot subventions if you can't afford for MCF.

For example, even my partner who still had his complete salary (thanks to social security and insurance) got 80% of the cost of home caregivers. If your pension is less, you can get a subvention covering 100% of the caregivers' cost.

The idea of inclusive houses is to share theses subventions and caregivers costs. After, for the other costs (food, rent...) the house managment team helps people who need to get subventions.

Mixity is very important for me. Rich or not, when Alz is here, you have the same need : to be cared with benevolence.

There has been a scandal here 1 year ago about ORPEA, expensive MCF were making a lot of money on the backs of the elderly. They where rationing depends, food...

Inclusive houses are a social answer: social, local and non profit. They are developing a lot thanks to associations.

Mint

Sounds nice

Elio52

Just because a speaker is expensive doesn’t necessarily mean it’s going to be the best quality. It’s important to remember that there are many factors that determine the quality of a speaker. Focus on the sound quality and features rather than just the price tag. https://speakersfeed.com/best-speakers-for-turntable/

Marta

French:  good to hear from you. I am cheering you on in this endeavor. 

My family has started such a home ( we call it Adult Family Home). We have four residents and are expanding to six. It took two years of planning before we opened last fall with the hoops you have to jump through here. I sense that you are not intimidated by the time and bureaucracy involved!

I wish you bonne chance.