Vanderbilt University Medical Center research survey available through 6/1/2023
Vanderbilt University Medical Center is conducting research on how to leverage collective knowledge and interactions in online platforms, such as Reddit, ALZConnected, and Facebook to assist informal caregivers for people living with Alzheimer’s disease or other dementias (ADRD). Informal ADRD caregivers refer to those caregivers who are family members, friends, neighbors of the care recipient, or other unpaid caregivers. As part of this research, this ongoing survey will ask about your background, caregiving experience, as well as your belief in the value of support from other ADRD caregivers, or any experience of using any online platforms (such as Twitter, Facebook, Reddit, ALZConnected) for seeking informational or emotional support for caregiving a person living with ADRD.
Your attitude to, or belief in the support from other caregivers will be of great value to our research. There will be about 61 questions, but most of them are single choice, which will take you approximately 20-25 minutes. Participants will be entered into a raffle to receive one of 48 amazon gift cards (2 $100, 6 $50, and 40 $25 cards). Please click the following link to start the survey. The deadline to complete is June 1, 2023. Thanks very much for your support and contribution to this research.
Survey link: https://redcap.vanderbilt.edu/surveys/?s=P3A3LKPAMF8H7TNN
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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Categories
- All Categories
- 473 Living With Alzheimer's or Dementia
- 239 I Am Living With Alzheimer's or Other Dementia
- 234 I Am Living With Younger Onset Alzheimer's
- 14.1K Supporting Someone Living with Dementia
- 5.2K I Am a Caregiver (General Topics)
- 6.8K Caring For a Spouse or Partner
- 1.8K Caring for a Parent
- 156 Caring Long Distance
- 105 Supporting Those Who Have Lost Someone
- 11 Discusiones en Español
- 2 Vivir con Alzheimer u Otra Demencia
- 1 Vivo con Alzheimer u Otra Demencia
- 1 Vivo con Alzheimer de Inicio Más Joven
- 9 Prestación de Cuidado
- 2 Soy Cuidador (Temas Generales)
- 6 Cuidar de un Padre
- 22 ALZConnected Resources
- View Discussions For People Living with Dementia
- View Discussions for Caregivers
- Discusiones en Español
- Browse All Discussions
- Dementia Resources
- 6 Account Assistance
- 16 Help