Caring for family member with LOMEDS

Bebebravo

Is anyone caring for LOMEDS patients? My family member was born with Down Syndrome . Now has Alzheimer’s. Please reach out

M1

Welcome to the forum. I don't have personal experience in this area but i do have professional exposure (im a doc and have had two families in my practice). There was a forum member named Cobalt who was dealing with early dementia in her developmentally disabled son (not Downs), but I haven't seen posts from her in a while. I know she lived in Arizona and they had been featured in some newspaper stories out there.

I hope others will answer your post. There is much good support to be had here, regardless.

harshedbuzz

Hi and welcome-

There was a woman who was caregiver to her sister with Down Syndrome when I first joined. I haven't seen her in a while.

There was also this thread which included a member whose LO has dementia/Down Syndrome. Perhaps you can reach out to her. She didn't get many responses at the time.

Trying to decide what is the best interest of my mom — ALZConnected

HB

Marta

Hello and welcome.

How is your loved one doing? Are seizures under control?

Are there specific issues that you want to discuss?

Browse the forum- lots of good info.

Pam14

Bebebravo - I believe I'm the person whom harshedbuzz is referring to. My sister with Down Syndrome passed away from Alzheimer's 6 years ago. You won't find much information on this site regarding Down Syndrome with Alzheimer's. I would recommend the Facebook Group called Down Syndrome and Alzheimer's Support or to follow the Facebook page of the Adult Down Syndrome Center near Chicago, IL. You'll find a lot of good information at both of those places, as well as support in the Down Syndrome and Alzheimer's Support Group. Reach out to me if I can be of any other assistance.