Have any questions about how to use the community? Check out the Help Discussion.

Posts for Michael Ellenbogen

A couple of us are going to start posting information received from Michael. Through his contacts he gets lots of important valuable news about dementia, which he has graciously shared on Alzconnected over the years.

I will start with some of the items that he has sent me here.


National Alzheimer's and Dementia Resource Center


Hello,

Thank you for your prior participation in the National Alzheimer’s and Dementia Resource Center webinar series. We hope you’ll join us again.

On June 20, 2023, from 3-4 p.m. ET, the National Alzheimer’s and Dementia Resource Center will host the webinar, It’s a Journey: Age Friendly and Dementia Capable Health Systems. A description of the webinar and registration information follows.

Aging is a dynamic process that leads to new abilities and knowledge as well as risks for complex health conditions including dementia. The age-friendly and the dementia-friendly movements can work together to improve the health and well-being of older adults living with dementia and their families. These two national movements are key components of an age-friendly / dementia-friendly ecosystem and together they build better dementia-capable health services and supportive communities to support healthy aging for all older adults. The John A. Hartford Foundation has led the development of the Age-Friendly Health Systems movement with the Institute for Healthcare Improvement and other partners to spread evidence-based care based on the 4Ms Framework – what Matters to the older adult, Medication, Mentation (including dementia), and Mobility. MaineHealth’s work to become a Dementia Capable health system occurred in the context of the Age Friendly Health Systems spread. By aligning these initiatives with other system programming, and working with many community partners, there are sustainable and ongoing mechanisms to assess and support individuals in the community with dementia, as well as their caregivers.

Additional information about this webinar and the registration form can be found here: 6-20-2023 NADRC Webinar-Age-Friendly-and-Dementia-Capable-Health-Systems

Reminder: There is still time to register for the NADRC Webinar on May 25, 2023, from 3-4 p.m. ETVeterans Health Administration’s Strategy to Promote Aging in Place for Veterans.  Additional information about this webinar and the registration form can be found here: 5-25-2023 NADRC Webinar-Aging-in-Place-for-Veterans

Please note:

  • National Alzheimer’s and Dementia Resource Center (NADRC) webinars are free of charge and open to the public.
  • NADRC webinars are recorded and will be available for viewing at https://nadrc.acl.gov/.
  • Pre-registration is required to attend the live webinars.
  • Closed captioning is available during the live event and is included in the recording for all NADRC webinars.

 

If you have questions, please email [email protected].

Thank you,

National Alzheimer’s and Dementia Resource Center


Alzheimer's Associations campaign for full Medicare Coverage of anti-amyloid drugs (these posts will not always reflect my views on the subject).

On Wednesday, May 24 from Noon to 1 p.m., Alzheimer's Association advocates from across the region will rally outside the United States Department of Health and Human Services Headquarters on 200 Independence Ave SW in DC to demand a reversal of the decision to deny people living with Alzheimer’s access to FDA-approved drugs. Please join us for this important event as we make our voices heard on this unprecedented and unjust decision. Bus transportation will be available from Richmond and Baltimore. Register for more details.

REGISTER HERE

Home Assessment Tools to Allow Seniors to Age in Place

HUD announces grants for low-income seniors to age in place - $15 million in new grants will go to fund health and safety home repairs for seniors

The U.S. Department of Housing and Urban Development (HUD) has announced the disbursement of nearly $15 million in new grants to help with health and safety home repairs for low-income seniors with the express purpose of enabling them to age in place. The funds will be distributed to 13 non-profit organizations and one state government.

Health and home

“Provided through HUD’s Older Adults Home Modification Program (OAHMP), these grants enable low-income elderly persons to remain in their homes through low-cost, low barrier, high impact home modifications to reduce older adults’ risk of falling, improve general safety, increase accessibility, and improve their functional abilities in their home,” HUD said in its announcement.

These repairs will help keep older Americans out of nursing homes or assisted care facilities, should they so choose, the department said.

In terms of the impact of these grants, they will provide “home modification services to more than 1,900 senior families in both urban communities and communities with substantial rural populations,” HUD said.

HUD Secretary Marcia Fudge said allowing more seniors to choose where to live in their later years will help improve the quality of life for qualifying beneficiaries.

“By providing a pathway for more older adults to stay in their homes, we are helping to improve lives and ensuring the opportunity for seniors to age with dignity,” Fudge said.

Matthew Ammon, director of HUD’s office of lead hazard control and healthy homes, said these kinds of repairs also have added benefits.

“There is a strong connection between health and housing,” Ammon said. “These grants provide a critical resource to communities to make low-cost, low barrier, high impact home modifications tailored to the needs of the residents.”

Of the areas receiving funding, seven are described as “substantially rural” while an additional seven are described as “urbanized.” The states slated to receive funding include California, Delaware, Georgia, Illinois, Louisiana, Minnesota, Mississippi, North Carolina, Ohio, Tennessee and Virginia.


SAVE THE DATE

 

Global-US BrainTrust Dialogue Series:

The Journey from Diagnosis to Treatment of Dementia: Current Clinical Practice and Lived Experience


31 May 2023 

12:00 - 1:00 EDT | 18:00 - 19:00 CEST

Virtual

 

Global-US BrainTrust Dialogues

Where influential leaders and guests from government, civil society,

business, and philanthropy converge to discuss the greatest brain and mental health challenges of our time. 

The Journey from Diagnosis to Treatment of Dementia

The first Global-US BrainTrust dialogue of 2023 will convene Alzheimer’s experts and advocates to discuss pressing topics related to the dementia journey. The event will cover a range of themes, from risk communication and prevention in and outside of memory clinics, to diagnosis, treatment, and current clinical challenges. Our guests — both experts and lived experience advocates — will have the opportunity to share their ideas for innovative and accessible solutions to tackle the challenge of Alzheimer’s.


The Global-US BrainTrust is committed to amplifying both the clinical and patient voices within our critical dialogues. By centering patients in the conversation, the Alzheimer's and dementia community ensures that solutions are informed by real-world experiences and grounded in empathy. 

 

Click here to register.

I will try to post these one at a time after this.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more