Have any questions about how to use the community? Check out the Help Discussion.

“Being Mortal” + hospice hospice hospice

terei
terei Member Posts: 580
Seventh Anniversary 500 Comments 100 Insightfuls Reactions 100 Likes
Member

Please please please take note: You do not have to decide yourself whether your LO is eligible for hospice. If your LO is declining, CALL THEM. Their assessment will give you the answer. You may not be ‘seeing’ what is clear to others. If you see your LO daily or even regularly,, sometimes their true condition is not obvious to YOU, but can be to an objective party. There is no downside to having an assessment + no downside to having hospice help you + your LO.

My second plea: If you have not, please read ‘Being Mortal’(Atul Gawande). Face it, people, we are all ‘terminal’ . We should all prepare to die + when your LO cannot, we need to help them have the best death possible. This book will give you an honest perspective on how to accept our + our LOs mortality

I know, broken record.

Comments

  • For My Sister
    For My Sister Member Posts: 8
    Second Anniversary First Comment
    Member
    edited May 2023

    No, not a broken record. This is a message that needs to be spoken.

    My sister entered Memory Care in early 2022, and I have watched her Alzheimer’s progress as she slowly declines. Her MC facility was doing an OK job in caring for her, but I wanted more for her. I wanted more personal care for her. I had her assessed by Hospice, and she was approved for Hospice Care. Now there are more hands on her on a daily basis. The nurse practitioner visits her weekly, and her personal care nurse visits her twice a week. They shower her twice a week. If her meds need to be adjusted, they are right on it. If I call with a concern, they immediately address it. If she needs any type of equipment, they send it.

    Yes terei, you are right. This disease is terminal. And I want my sister to be as comfortable as possible as she travels to the end. And I have seen personally that Hospice Care offers that level of care and comfort to my sister that I want for her.

  • terei
    terei Member Posts: 580
    Seventh Anniversary 500 Comments 100 Insightfuls Reactions 100 Likes
    Member

    Back

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more