Community to talk with

Jami Boyle

Thanks Iris. I am finding myself going to alz… To check and see if anyone wrote to me. I take that as a sign of investing in community. I’m scared and angry and confused myself. My DH seems to be more confused lately, not remembering things he remembered two weeks ago. Although there are questions about his health and decline all I can think about is myself, my loss, my requirements, my doubt that I can manage this. Sigh

CindyBum

Hi,

Not sure what stage you're in with this, but boy can I ever relate. I often can't quite tell who I'm crying for; for DW and the increasing confusing I'm seeing and how terrible it must be for her to still be mostly there and able to recognize she's losing her ability to figure things out. Or me, and the real grieving I'm already doing recognizing that this is really happening and my life has already changed so much and there is still a road ahead. We are experiencing a huge loss, Jami. Maybe we can both try to give ourselves a break for working through the earlier parts of this new reality for us, and that grief and fear is the proper reaction. I'm trying to breathe, have some conversations with myself, and getting up each day to start again. Big hugs.

ButterflyWings

Dear Forum Mates - I don't know if you have seen this link on the ALZConnected Resources tab, (Solutions Center) above - but maybe it will help to input your zip code and see if there is anything or anyone that interests you. https://www.communityresourcefinder.org/

As lonely as this road feels, we are not alone. Thank goodness for this online community. I hope your day has more peaceful moments than not.

Iris L.

Figuring out things and dealing with losses is what we have to do. No one else knows better than our cybermates!

Iris

toolbeltexpert

Welcome Jami and Cindy. I can understand these griefs and loss. Cindy you hit the nail on the head BREATHE. I learned that can really help.

We are all in this together. Keep posting and reading. Watch Teempa Snow or careblazers videos to learn. I found them very helpful early on. Ask anything here, you will find a kind ear to listen.

Stewart

Jami Boyle

Good morning fellow caregivers. Thank you for these empathetic words. Cindy, your comment about giving ourselves a break hits home. I also think your sharing about tears helped paved the way for me to receive that wisdom. Empathy first. Wisdom second. And then Butterfly’s link to a resource. I live in NH and honestly-and especially after Covid shutdown-numbers are disconnected, websites seem too complicated to navigate, nobody is calling me back. TEARS. I left 2 teary messages with two places and finally got a call back. It wore me out. Today I’m taking a break, starting with reading in bed against the backdrop of morning rain and Thunder, coffee beside me. Right now I’m content. And I’m starting to feel a connection with this virtual group. Thank you.