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Why is it so difficult to receive respite help. I'm the only caregiver for my husband. He is blind, disabled and in middle/late stage Alzheimer. I feel so alone and exhausted. He does not sleep well at night which adds to my exhaustion. I have reached out to the county and Alzheimer association.
Comments
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Another possibility would be to connect with your local council on aging. They may be able to point you toward respite options and also help you figure out long-term care options. I'm sorry you're having such a hard time.
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hello,
I had a similar situation to yours. First, it would help to address the lack of sleep. We went through several rx's before we found the one that worked, and finally got a good result with Depakote. The only way i was able to be offered respite was through Hospice. They offered me a 5 day respite plan where my DH would be in their facility with 24 hour care . I was just about to take it when he became bedridden and passed away.
It was also through the Hospice doctor that we were able to find a sleep solution.
Definitely reach out to Council On Aging, as they sometimes have programs available where you could get a few hours to yourself.
I hope for you.
Maureen
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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