Worried and sad and cautiously optimistic

Anonymousjpl123

My mom has NPH and most likely another dementia diagnosis. I say this because her dementia/memory issue has progressed so rapidly in 2 years. I moved as fast as I could: in 1.5 years I got her placed, diagnosed, and surgery is scheduled in 2 weeks. Not bragging, just noting how fast it has been.

Now, I feel I may still have been too late. She is here with me for a visit. I am sitting here trying to relax. Today she asked about my “sister” who she thinks is another persons she talked to this week with my same name. First time she has done that. Her brain is so run down. I don’t know what the surgery will or won’t help. They say cognition is least likely to improve - her walking and incontinence will.

It is heartbreaking. I really wanted to move her back to AL after the surgery but I can’t see that happening as of now. Just venting my sadness. It’s all so exhausting. We were never close before. I am trying to make this ok: normal. That’s what I want. To try to have boundaries and do right by her and not f up my life doing it. Ok thank you for the vent. ❤️ to all of you.

harshedbuzz

@Anonymousjpl123

You have been a tremendous advocate for your mom. She's safe and about to have a procedure that will improve her quality of life significantly even if it won't likely reverse her cognitive decline.

I agree that however complicated a relationship is/was every bit of dementia just sucks.

HB

Anonymousjpl123

Amen @harshedbuzz amen. I do hate what this disease does, and hope this surgery has some benefits. I really do. And I feel exactly as you do about the disease regardless of how complex the relationshio is/was. That helped.