Mom was diagnosed when I was 21. Anyone else out there like me?

MaggieCavaliere

I’d love to connect with those of us whose parents got an early-onset diagnosis while you were / are in your 20s. My mom died 3 weeks ago after an 8 years battle with the disease and I feel so out of place in support groups with folks who at their youngest got the news while they were in their mid to late 30s.

mommyandme (m&m)

I’m not like you… but I’m so so sorry! Your situation is not the natural order of things. You’re so young, heartbreaking. I hope you find the supports you need. Thanks for sharing here, with us.

Emily 123

So sorry, Maggie--I know there have been some recent threads in the past few months. Try searching for 'young' and see what comes up?

kmw11

My mom showed signs of decline while I was in my mid to late 20s but I am only really going through this all now at the age of 31. I can’t imagine being able to handle all that comes with caregiving and watching your loved one go through dementia at 20. You shouldn’t have had to grow up so fast. You shouldn’t have lost your mom so young. My heart goes out to you as you navigate through your loss and hope you find some peace in this next chapter of your life. If you can, keep sharing your story. In vulnerability there is strength. I believe you will find connections to people with similar experiences to your own. All my best.

BWomack213

I’m so sorry to read this & I’m sorry to read about your mom’s passing. I have been caregiver for my mother since 13, due to other medical issues but she’s recently been diagnosed with Alzheimer’s. I am 31. My dad (he’s 56) had mixed dementia and he’s in a more progressed state. My little brother is 9 years old (my dads child) and he’s having a hard time understanding why my dad isn’t as active as he once was, and he usually asks why he doesn’t get to see him.

I’m honestly trying to figure it all out myself. I hope you’re getting some guidance from the group and I’m always willing to listen - I had to grow really fast dealing with my moms issues and now seeing it from my dad has made me even more overwhelmed. I’m not sure how I get through it all.

Sending kind spirits your way. 💕

CristiK

Hi,

I'm new here, like my first post. My mom's journey in getting diagnosed has lasted so long. So many waiting lists... She moved in with me and was showing many clear signs and I was 25 and moving into my and my partner's first solo apartment with no roommates. I'm 28 now and it's advanced so much but have felt so alone. I feel like most caregivers are full adults with homes and families, not some 20-something year old girl just starting her career. I don't know how much longer we have but I know my 20's are gone.