Headaches

kasharb

Good Evening Friends,

My DH who is nearing severe stage is showing many signs of progression. He is having terrific headaches. I am attributing them to his PCP putting him on Abilify but could be progressions as it is certainly evident. The PCP believes it could be a little of both and is taking him off Abilify (of course weening him off) and will start him on Rexulti. Has any one else had experience with severe headaches - my DH is one that never really had a headache.

One other question as I educate myself of rexulti - my copay for a months supply with be $500. Anyone have ideas how to offset this cost??? I have looked into Medicare options but probably will not qualify for any income/resource based assistance according to what I read about that. My lawyer says she thinks we can qualify for Medicaid so I will start that process soon - if that is the case will Medicaid pay for this expensive drug??

I appreciate all your feedback- Many Thanks

Pat6177

Kasharb, I googled Rexulti and got onto the rexulti.com website. I noticed that they have a cash card for discounts. I have no idea if you’ve already seen this. If not, it’s maybe worth checking out.

M1

There are cheaper generic drugs in the same family that are similar to Rexulti though not FDA approved for dementia. Ask about Seroquel or Risperidone, these are very commonly used and would cost much less. Headache is the most common side effect of Abilify.

Howaboutnow

Hi, I don’t know anything about Rexulti, but if it is similar to Seroquel, with the free Good Rx app (not using any insurance) seroquel is heavily discounted. Ex. 90 tablets 25mg are $11.60 for a local-to-me Safeway. In the app, prices are searched near you. Then you choose which pharmacy and price is best for you. Most large grocery chains honor pharmacy apps and my experience has been they will search on their end even which app gives best discount. If you pursue that, go during non-peak store hours when they can be more generous with their time. 😊

Marta

Agree that Rexulti’s cost buys you nothing that you wouldn’t get with Seroquel or Risperdal. I would forget about it. Medicaid isn’t going to cover it because inexpensive alternatives are available.

ImMaggieMae

Agree with Howaboutnow on using Goodrx for MUCH lower prices on prescription drugs. Our grocery chain pharmacy has my Goodrx number on file, so I don’t even have to look it up. They are typically about half the price of our co-pay with our part D insurance. Goodrx covers mostly generic drugs, not the new brand name ones. Goodrx prices are different at each pharmacy chain around here.

Ronk246

I just found out that Amazon has begun filling prescriptions. One scrip I have gotten for several years through a local pharmacy currently costs $74.00 for a 90 day supply is only $27.00 through Amazon. I am awaiting the delivery of my first order, placed it yesterday, supposed to be here tomorrow.

My PCP had no problem sending the refill to Amazon, I hope this is not a "If it sounds too good to be true, it probably isn't."