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Scared of the Future

Accidentally put this under the wrong subject. I am starting to feel a little scared of the future with my mom. She mentioned today that she doesn’t remember our Christmas’s of when my brother and I were little. It seems her memory is slowly slipping more this year. I fear this may be one of our last holidays that she truly remembers. I pray not, but I’m learning to just enjoy each day with her. I am slowly doing more and more for her and trying to go with the changes. Some days I do better than others. We are still blessed because she does still do so well and knows who I am and still talks to her friends. I know we need to plan for the future but that scares and overwhelms me so much, so I do it on days that it doesn’t bother me so much. I’m looking into more resources to help us financially as I care for her full time but only get so much as a caregiver. Some days are so frustrating and others are truly joyful. I guess I just wanted to share a little and I love to support everyone provides each other here. It makes this journey feel a little lighter and less lonely. Thank you.

Comments

  • Emily 123
    Emily 123 Member Posts: 766
    Fourth Anniversary 500 Comments 100 Likes 25 Care Reactions
    Member

    I think it sounds like you're coping with this well. Don't be too hard on yourself...🙂

  • SDianeL
    SDianeL Member Posts: 940
    500 Care Reactions 250 Likes 500 Comments 100 Insightfuls Reactions
    Member

    This disease is terrifying and heartbreaking. Cherish each day. Your Mom is lucky to have you. You're doing great.

  • missylane72
    missylane72 Member Posts: 8
    First Comment
    Member

    I understand what you are saying. My mom can’t remember what we did that morning. She is talking more about the past and calls my son by her brothers name. I get so frustrated but I try to keep reminding myself that I still have her. It’s hard and feels like a lonely road to travel

  • ButterflyWings
    ButterflyWings Member Posts: 1,752
    500 Likes Fifth Anniversary 1000 Comments 250 Insightfuls Reactions
    Member

    This e-book used to be recommended frequently to new members here. It helps explain what you are experiencing and how we can be more compassionate caregivers by understanding what our PWD LOs are going through.


Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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