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Experience with Aduhelm or Leqembi

JuanV
JuanV Member Posts: 1 Member
in I Am Living With Younger Onset Alzheimer's
Good afternoon. I hope everyone is doing well and enjoying the Holiday season.
I'm interested in hearing everyone's experience with aducanumab (Aduhelm) or lecanemab (Leqembi). If you were in a clinical trial or are currently receiving one of these treatments, could you share your experience here? Do you notice any improvements? Side effects?

Thank you!

Comments

  • Larrytherunner
    Larrytherunner Member Posts: 84
    Eighth Anniversary 10 Comments 5 Insightfuls Reactions 5 Likes
    Member

    Based on the lecanemab clinical trial, the drug is more effective in slowing down decline in men than in women.

    https://www.axios.com/2023/07/11/leqembi-azheimers-drug-women-men-efficacy

  • Janutt
    Janutt Member Posts: 130
    100 Comments 5 Insightfuls Reactions First Anniversary 5 Care Reactions
    Member

    That’s good to know. I may be part of a study called mib-???? I completely forgot the numbers to this. Sorry. It is niacin which is something they’re trying to see if this works for decline. If I am eligible I will start in about 8 weeks due to other vitamins I am on and will have to stop. Them with my doctor’s permission I will be able to participate in this study.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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