Anyone else taking care of otherwise healthy dementia patient?

SiberianIris · May 9

Thank you for the update. I've been following this thread since you started it. We're 2 going on 3 years into a dementia diagnosis with my 96 y.o. mother. Other than her failing brain, she is otherwise healthy and has progressed from stage 4 to stage 5.

I am sorry you are in this hell of a holding pattern. It is hard to fathom how some people's bodies can go on living even in stage 7 when supposedly their neurological decline is affecting their organ systems. Dementia sucks 😥

Ragfoot · May 10

https://alzconnected.org/discussion/comment/237917#Comment_237917

I asked for and received a Hospice evaluation for my DW. She was accepted and determined to be solidly in Stage 7c. After 3 months, as you put it "with no signs of decline", they "graduated" her out of the Hospice program. I was given a list of conditions, that if they were to occur, to request another evaluation.

vtech1951 · July 8

So approaching the 4 year aniversary of her late and last stage of dementia with NO changes..well I suppose you could say she is sleeping a bit more but that could be age related as she is approaching 87 soon. Not to sound mean, heartless, or uncompassionite, but I think to myself maybe today she will wake up with no appetite,maybe today the day she wont have enough energy to scream, maybe today she will sleep all day, but no the last 4 years of this has put everyone through hell..she is miserable every day, her life consisits of staying in bed every day, always wanting to eat, and yelling nonsense at the top of her lungs. She is also on her third hospice program, so if this keeps up for another 6 months (which I know it will) we will have to search out ANOTHER hospice.